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Jul 12, 2010

Facing Major Surgery on Tuesday, Seeking Support and Advice

The topic is about preparing for a significant surgery where a colostomy is converted to an ileostomy. This change is necessary because the large intestine is not functioning properly. Here’s what you can expect before and after the surgery, along with some helpful advice:

- The surgery is expected to last between 6 to 8 hours, with a lot of work needed to address previous surgical scars.
- You might stay in the hospital for about two weeks, followed by a recovery period at home lasting 4 to 6 weeks.
- It's natural to feel scared, especially if you've had many abdominal surgeries before. Hearing from others who have gone through similar experiences can be comforting.

After the surgery, here are some things to keep in mind:

1. **Surgical Pain & Recovery**
- The pain might be more intense than your original colostomy surgery because a new stoma is created while the old one is closed.
- Nausea, vomiting, and abdominal spasms are common in the first week, but many people feel much better once they return home.

2. **Hospital Stay & Recovery Time**
- Hospital stays can range from 1 to 2 weeks, but regaining full strength might take months.
- Consider a gradual return to work, starting with half-days, and ensure you get plenty of rest.

3. **Hydration & Kidney Care**
- Since the ileostomy output is liquid, it’s important to drink plenty of fluids. A nephrologist can help monitor your kidney function.

4. **Questions for Your Surgeon**
- Ask for a well-protruding stoma placed to the right of the midline to avoid interference from waistbands.
- Inquire about using a protective wrap or mesh to reduce adhesions over remaining organs.

5. **Pouching Systems & Skin Care**
- Try different wafers and pouches from various manufacturers as your needs may change with the stoma’s shape.
- Many find success with one-piece drainable pouches.
- For odor control, consider using a liquid deodorizer in the pouch.
- Manage sensitive skin around the stoma, as allergic reactions to adhesives usually improve once the area heals.

6. **Eating & Output Management**
- Chew your food thoroughly and introduce new foods slowly, noting how they affect your output.
- After healing, most people can enjoy a wide variety of foods, so keep experimenting to find what works for you.

7. **Mental Outlook**
- Keeping a positive attitude is crucial. Many long-term ileostomy users report a good quality of life.
- Recovery can be slow, especially if you’re usually active, but it can lead to significant improvements over time.

8. **Miscellaneous Tips**
- Be assertive about your stoma size and appliance choices.
- Protect your stoma from hard impacts, as minor bleeding can occur if it gets hit.

These insights and tips can help you prepare for the surgery and manage your recovery more effectively.
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