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40,882 members
Jul 27, 2010

Total Proctocolectomy Experiences Needed

Topic Explanation:
The discussion revolves around individuals seeking and sharing experiences related to undergoing a Total Proctocolectomy, a surgical procedure involving the removal of the rectum, anus, and colon. The original poster, who is scheduled for this surgery, is seeking insights from others who have undergone the same procedure to understand what to expect in terms of recovery, complications, and overall life changes post-surgery.

Extracted Advice and Helpful Insights:
1. Post-Surgery Experience and Recovery:
- Recovery can involve a significant adjustment period but many express feeling much better after recovery.
- Hospital stays post-surgery can vary; one individual mentioned a six-day hospital stay and an eight-week recovery period before returning to work.
- It's common to experience some complications like minor infections or blockages, but these are generally manageable.

2. Management of Post-Surgical Changes:
- Leakage issues with ileostomies can be problematic; discussions around managing these and the importance of proper stoma placement were highlighted to avoid complications like leaks starting from the area near the midline scar.
- One person noted the importance of ensuring the stoma is placed far enough to the right to avoid issues with the wafer resting too close to the midline scar.

3. Emotional and Psychological Adjustments:
- Adjusting to life with a stoma can be challenging and shocking initially, especially when dealing with the visibility of bodily functions in ways not previously experienced.
- Community support and open discussions with others who have undergone similar surgeries can provide comfort and practical advice.

4. Practical Tips for Surgery and Post-Op:
- It's helpful to write down questions to ask the doctor post-operation as medical professionals can be rushed and patients might forget important queries during follow-up visits.
- One person suggested being prepared for unexpected occurrences like sudden bleeding, which can be alarming but is often not serious.

5. Long-Term Health and Lifestyle:
- Many who have undergone the procedure report a significant improvement in quality of life once fully recovered.
- Engaging in gentle activities and taking it easy for a few months post-surgery is recommended to ensure proper healing.

6. Medication and Pain Management:
- Pain management post-surgery varies; some individuals take minimal pain medications, while others might need them for a longer period. One person mentioned only needing painkillers for about a week post-surgery.
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