Living with a Colostomy Bag: Share Your Experiences

Replies
11
Views
830
Hermit
Jul 23, 2025 11:12 am

Have had this for 2 years! I like my bag! Anyone else?

ron in mich
Jul 23, 2025 12:04 pm

Hi Hermit, can't say I like the bag, but having it for forty years makes it just another part of life.

AlexT
Jul 23, 2025 12:16 pm

Don't mind the bag; I do dislike my hernia.

Posted by: iMacG5

Hi Crossley. Ya know, I think it’s all about feelings. I don’t mean the pain feelings which could control everything. I mean the feelings inside our heads, our hearts and even our souls. I mean the feelings of who we are now compared to who we were; how we accept our situation or maybe we don’t. My wife asked how I felt and I said, “like crap”. She asked what hurt and I answered, “Nothing hurts, well, everything hurts, I don’t know, It all sucks.” That was a long time ago. You question if your feelings are normal. How normal is it to relocate your butt hole to your belly where it’s usually in the way of your belt and, you know. But that’s where we are and for lots of us we are so much better off than we were before, physically. Emotionally, psychologically, well, that might be a different story. I believe talk therapy is wonderful if we could find a real empathic or sympathetic listener. So guess what! I found MAO and began “talking” with a keyboard with some of the wisest, kindest most sympathetic and compassionate folks on the planet. Regardless of where we’ve been, lots of folks here have been there and worse places and found their way back healthier and happier. We really do help each other.
Keep “talking”,
Mike

IGGIE
Jul 23, 2025 12:59 pm

Very happy with my bag.

Axl
Jul 23, 2025 2:18 pm

Well ... I wouldn't recommend it ...

But I don't like the alternative much 🤣

 

How to Manage Emotions with LeeAnne Hayden | Hollister

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Ben38
Jul 23, 2025 2:37 pm
Very helpful

Love my bag to bits; it's given me the gift of life. I would have died over 30 years ago without my cute little stoma. All the things I would have missed out on—there are no words to describe how good it feels to be alive!

SusanT
Jul 23, 2025 4:40 pm
Very helpful

Love both of my permanent bags (urostomy and colostomy). They saved my life.

I'm a bit conflicted about the two temporary bags (nephrostomy and pelvic drain).

warrior
Jul 23, 2025 6:25 pm

Agree. Pretty much just get on with life and ignore it as much as possible. Until it beckons. 🧼😠🚽🧻

I'd rather see "the bag" on someone else though. 🤷‍♂️.

TerryLT
Jul 23, 2025 8:40 pm
Very helpful

I love my little stoma that saved my life and improved its quality. I might have moments of frustration, but they usually pass quickly.

Terry

TerryLT
Jul 23, 2025 8:54 pm

Well, you know, if you get rid of the two temporary ones, you'll have to relinquish your overachiever status! Although, you are still one ahead of most of us, so maybe not...

Terry

SusanT
Jul 23, 2025 10:50 pm

I'm ready to pass on my overachiever status. Emptying four bags in a single bathroom trip gets old. 🤣

blondedagmar1
Jul 24, 2025 3:44 pm

Not going to complain! I only have two to empty. 🤞👋