Sun 11th May

Replies
2
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1297
blueonthetyne
May 11, 2014 7:56 am

Well, Wednesday night's trip to the football was such a breeze I'm going to do it again today. One whole week back at work and my first late shifts brought some interesting problems. I tried eating at midday with a 3 PM start, but I found around 8 in the evening the bag started to fill quite drastically. I'm a bus driver and do four and a half hours on the road. I was getting a bit concerned, but I did manage to get through.

I used to go out with a walking club and feel so well and fit. Now I would like to go back to it. What do you think about being in the great outdoors for a whole day? I'm going to give it a try and just pack a few extra bits in my walking bag. Happy Sunday to you all.

Monsieur Le President
May 27, 2014 2:14 am

You'll be eating leaky pudding soon. Exercise of any sort is brilliant. Get your boots out, get going. Take a spare kit and lots of wipes just in case, but going to the toilet is possibly easier than before. Good luck. Balderee, baldara, etc.

Posted by: ejbetty

Geekyjen,

Thanks for the reply.  I will be seeing my doctor on Friday and mention Entyvio.  I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared.  The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade.  Turns out I have been diagnosed with LUPUS. It is attacking my nervous system.  I had ulcerative colitis in 1996 and they had to remove my colon.  Had a J pouch for 10 years, until it started failing.  I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently.  I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared.  I have had two hospital stays now because of the blisters and the paralyzing incident.  I will be dealing with this forever now.  I have just been working on acceptance.

I love this website because of wonderful people like you!

 

Betty

blueonthetyne
May 27, 2014 7:53 am

Had a great time out, Monsieur, and now back in the walking mode. Treated myself to new boots yesterday. You're right, it was much easier; just stepped into the trees, took a black bag out, and the rest is history, as they say. Off again tomorrow. I knew the little pouch in the top of my backpack was there for a reason!