Well, Wednesday night's trip to the football was such a breeze I'm going to do it again today. One whole week back at work and my first late shifts brought some interesting problems. I tried eating at midday with a 3 PM start, but I found around 8 in the evening the bag started to fill quite drastically. I'm a bus driver and do four and a half hours on the road. I was getting a bit concerned, but I did manage to get through.
I used to go out with a walking club and feel so well and fit. Now I would like to go back to it. What do you think about being in the great outdoors for a whole day? I'm going to give it a try and just pack a few extra bits in my walking bag. Happy Sunday to you all.
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
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