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41,403 members
Sep 07, 2010

Married couples with stomas - any out there?

The topic explores whether there are married or cohabitating couples where both partners have a stoma. A stoma is an opening created surgically to allow waste to leave the body, and it can be an ileostomy, colostomy, urostomy, or a combination of these. The discussion invites people to share their experiences, whether they are married or simply living together.

Here are some insights and advice shared by people:

1. There are indeed couples where both partners have a stoma:
- One couple includes a partner with a permanent ileostomy and another with a permanent colostomy. They successfully managed a long-distance relationship across continents before living together.
- Another couple met through a forum, both having ileostomies, and they find that sharing the same medical situation is beneficial.
- A pair, each with a urostomy, live in different countries but visit each other regularly, finding comfort in their shared experiences.
- A couple has been together for 25 years; one partner has a urostomy due to bladder cancer, and the other due to a congenital bladder defect.
- One person met their ostomate partner through the forum; the partner has since had a successful reversal, and their relationship remains strong after 15 months.

2. Benefits mentioned by these couples include:
- A mutual understanding that removes the need for explanations and makes conversations about noises, leaks, supplies, or body-image concerns easier.
- Shared experiences can enhance emotional support and help both partners focus on their relationship rather than medical differences.
- Long-distance and even intercontinental relationships are possible, and distance should not discourage ostomates from connecting.

3. Other observations:
- Some members have noticed that relationships can break down when only one partner has a stoma, leading some to seek partners who are also ostomates.
- Couples where only one partner has a stoma can also thrive. For example, one respondent without a stoma is "deeply in love" with a partner who has no colon due to colitis.
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