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41,452 members
Sep 22, 2010

Upcoming Surgery Update and Personal Reflections

This topic is about someone preparing for their sixth surgery, which involves moving their stoma, repairing multiple hernias, treating ulcerated skin, and addressing any leftover issues from a previous surgery in June. While waiting for the surgery, they have been dealing with constant pain, exhaustion, and the challenge of balancing work and studies. They plan to update their community from the hospital and remind everyone to be kind and not to worry about the small things.

Here are some updates and insights shared by the person:

1. One week after surgery, they reported that their stoma is now smaller, their abdominal contour is flatter, and the surrounding skin has been tightened to prevent prolapse. They were using the pain medication OxyNorm at that time.

2. Later, they stopped using pain medication but were disappointed that the new stoma sits about 1 mm below skin level, making it hard to get a reliable seal. The appliance wear time has decreased from 4-6 days to 2-3 days, even with paste. They experienced a minor leak at work but are slowly getting back to normal life and returning to their security job.

Here is some advice and helpful insights shared by others:

- Technical stoma-placement guidance:
- Communicate clearly with the surgeon about where you want the stoma for the best appliance seal.
- Ensure it is positioned away from the mid-line, navel, and skin folds.
- A well-shaped, slightly protruding stoma (around 8–12 mm) is easier to manage. This shaping is an "art," so insist the surgical team aims for this.

- General recovery tips:
- Rest as much as possible after surgery, stay hydrated, and accept help and "healing hugs."
- Take things slowly at work and prioritize personal safety, especially in aggressive situations.

- Emotional support:
- The community is offering support, sending prayers, positive thoughts, and virtual hugs.
- Encouragement to stay positive, keep their chin up, and remember that friends are eager for updates.

- Encouragement for future appliance management:
- Using stoma paste is a good temporary solution for a slightly recessed stoma. Monitor wear times and adjust as needed until the area settles.
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