This topic is about someone who has been experiencing persistent pain and leakage issues with their new end ileostomy. They are seeking advice on how to manage these problems and are looking for suggestions on appliances and care solutions.
Here are some helpful insights and advice shared by others:
1. Seek professional help immediately:
- It's important to contact a stoma or enterostomal therapist to check for issues like hernias, scar problems, improper sizing, or the need for convexity.
- Joining an Ostomy Support Group can be beneficial. You can find professionals through your hospital's nursing office or websites like www.wocn.org.
2. Experiment with different appliances and request free samples:
- Reach out to suppliers for samples until you find a reliable fit.
- If the stoma is flush or retracted, consider trying convex products such as Coloplast convex long-lasting 2-piece with filter, Convatec Esteem Synergy 2-piece convex flanges, or Convatec moldable convex flanges & seals.
- Some have found success with Hollister flange and pouch systems, or using Eakin rings to mold around irregular or scarred areas.
- Filling small gaps with ostomy "glue" or paste can help stop seepage.
3. Consider accessory garments and support:
- Ostomy Secrets underwear and custom-cut hernia/support belts can help hold the wafer tight, limit leaks, and boost confidence.
4. Manage output thickening and dehydration:
- Over-the-counter thickening agents like Imodium, Lomotil, or Prevalite can be used with physician approval.
- Foods like jelly, marshmallows, gummy sweets, green tea, and kefir blended with fruit may help slow or thicken output.
- Balance fluid intake with thickening foods or medications to avoid dehydration.
5. Explore pain reduction strategies:
- Buscopan may be prescribed for bowel spasms due to high-volume output.
- Applying local heat, like a hot-water bottle, under the stoma can ease cramping.
- Meditation techniques alongside medical therapy can help manage chronic pain.
- Persistent or worsening pain, especially with hernia or excessive scarring, should be reviewed by a surgeon, and medication for chronic pain may be necessary.
6. General reminders:
- Regularly measure the stoma and switch to correctly sized pre-cut or custom-cut wafers.
- Attach the wafer with the bag already connected for easier positioning.
- Always consult your doctor before self-prescribing any medications.
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