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Dec 11, 2010

Using Disabled Toilets with an Invisible Disability - Need Advice

This topic is about the challenges and experiences of using disabled toilets when you have an invisible disability, like a colostomy. It also touches on managing appliance worries and building confidence in public settings. Here are some helpful insights and advice:

1. Using Disabled Toilets
- You have every right to use accessible toilets if you need them, regardless of whether your disability is visible. Try to ignore any stares.
- Consider having a few responses ready, such as "I’m an ostomate" or "Not all disabilities are visible." Sometimes, showing your pouch can quickly end any confrontation.
- Carrying an ostomy association card might also help in these situations.

2. Handling Confrontations
- Keep your confidence up and remember that you probably won’t see these people again.
- Using humor or being straightforward, like offering to let them watch a bag change, can quickly silence critics.

3. Leak Prevention and Skin Protection
- Make sure the wafer hole fits your stoma closely. If leaks start, try cutting a smaller hole, and a stoma nurse can help with measurements.
- Barrier rings or seals, like Hollister Adapt Rings or Eakin Seals, can improve the seal and protect your skin.
- Dry your skin thoroughly before applying the pouch, and warming the wafer with a hair-dryer after application can help.
- If the side tabs on Hollister products are uncomfortable, the Coloplast SenSura Click system is noted for its comfort and adjustability.

4. Pouch Contact with Stoma
- It is normal and safe for the plastic film of the pouch to rest directly on the stoma; it doesn’t need to "breathe."

5. Night-time and After-meal Issues
- Large evening meals or high-fiber foods late in the day can cause issues like "pouch-splosions." Some people find it helpful to limit fiber intake after midday.
- Keep extra supplies by your bed and change the pouch immediately if you feel active output.

6. Odor Control
- Commercial deodorants like Na’scent are highly effective.
- For a home remedy, try dropping mint Tic Tacs or eucalyptus sweets into the pouch.

7. Sampling Products
- Contact manufacturers like Hollister, Convatec, and Coloplast for free samples of different products until you find what works best for you.

8. General Coping Outlook
- Initially, the "small stuff" can feel overwhelming, but with time, these routines will become second nature.
- Celebrate each milestone, like your first solo shopping trip or wearing trousers again. A positive attitude can make adapting easier.
See full discusison
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