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Dec 22, 2010

Graphic Photo of My Stoma's Condition

This topic is about dealing with painful weeping sinuses or fistulas around a stoma, which have been caused by irritation from hernia mesh. The person experiencing this issue has shared their situation and is seeking advice and support. Here are some helpful insights and suggestions from others who have faced similar challenges:

- The person had 18 inches of surgical mesh placed during a hernia repair, which is now causing irritation and creating weeping sinuses or fistulas around the stoma.
- The wounds are painful, stinging, and burning, but appliances stick better when the skin is dry.
- Over-the-counter pain relief is being used, and the person plans to continue working through the holidays before seeking further medical care.
- They are experimenting with iodine powder to dry the sinuses and using paste to fill the holes, hoping to extend the wear time of their remaining wafers.
- There is concern about running out of supplies during the holiday season.

Advice and insights from others include:

1. Weeping sinuses rarely heal on their own, and surgery or stoma revision is often necessary. Some suggest relocating the stoma to the opposite side, which has been reported as easier than the original surgery.
2. It is recommended to consult additional surgeons or wound/ostomy specialists for a second opinion.
3. If a stoma nurse is unavailable, a GP (family doctor) can help dress the wounds. One person found success using a specific absorbent dressing changed every two days.
4. Using stoma paste to fill the fistula openings can improve adhesion and reduce leaks.
5. Iodine powder may help dry the exudate, but it's important to watch for any skin irritation.
6. If supplies are running low, contacting the manufacturer for free samples or emergency shipments can be helpful, as many companies are willing to assist.
7. Consider the potential risks of hernia-mesh repairs around stomas, as they can create new problems. It's important to weigh these risks carefully before any future hernia surgery.
8. Newer surgical options, such as surgical-grade fiber combined with glue, may be available. Seeking advice from surgeons experienced in fistula and stoma revision work is recommended.
9. Emotional support is important, and many people emphasize staying strong through the holidays, reassuring the person that they are not alone in this experience.
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