This topic is about whether having a colectomy and a stoma can help eliminate the extra-intestinal problems associated with ulcerative colitis (UC), such as joint pain and eye inflammation. The person asking the question has UC that isn't responding to medication anymore, except for steroids, and is considering surgery to improve their quality of life.

Here are some insights and advice shared by others who have been through similar experiences:

1. Many people have found that after having a total colectomy and ileostomy, their joint pain, fatigue, and other UC-related symptoms either disappeared or significantly lessened. Some have been free of symptoms for many years, ranging from 5 to 25 years.

2. Regarding eye problems, none of the respondents developed new eye issues after surgery. One person mentioned having some scar tissue from inflammation before surgery, but they did not experience any new flare-ups.

3. It's important to consider having the entire rectum removed during surgery (a total proctocolectomy). Leaving a "rectal stump" can allow UC to continue in that area, leading to pain, discharge, and an increased risk of cancer. Some people who kept a rectal stump needed additional surgery later on.

4. One person pointed out that stopping UC medications, like steroids and other anti-inflammatories, can also relieve joint pain. It's important to distinguish between side effects from medication and symptoms of the disease itself.

5. In terms of long-term quality of life, many people enjoy freedom from frequent and urgent bathroom trips, and they can work full-time, travel, swim, hike, and snorkel. Some still experience minor issues like skin or mouth sores, but these are manageable and much less severe than active colitis. It's also wise to stay open-minded about other health problems and not assume every new pain is related to the bowel.

6. For practical tips on living with an ileostomy:
- Carry a small "travel kit" with a spare pouch, flange, wipes, and a zip-lock bag. It's also helpful to keep a wide-mouth plastic container or lidded cup in the car for emergencies.
- Diet tolerance varies from person to person, but many people can eat a normal diet, including spicy foods, after the initial healing period.

No specific manufacturers or product names were mentioned in the discussion.