Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,456 members
Apr 21, 2011

Rectal blood 'floods/clots' - Seeking advice on symptoms

This topic revolves around the experiences and challenges faced by someone who has had an ileostomy and is considering further surgery, specifically the "Barbie-butt" surgery, which involves removing the rectal stump. The person is dealing with sudden rectal-stump bleeding and is seeking advice and insights from others who might have gone through similar situations. Here are some key points and advice shared by others:

1. **Diversion Colitis and Bleeding**
- It's common for people with an unused rectum to experience mucus and bleeding, often diagnosed as "diversion colitis." Regular monitoring with yearly scopes is recommended.
- Any significant change in bleeding should be promptly investigated to rule out cancer or tears.

2. **Cancer-Risk Considerations**
- There is a significant cancer risk for those with long-standing ulcerative colitis or Crohn’s disease in a defunctioned rectum. Relying solely on surveillance can be risky, as unexpected malignancies have been found after elective proctectomy.

3. **Experiences with Proctectomy ("Barbie-butt")**
- Many find relief from medication, worry, and leakage after removal. Recovery experiences vary, with some returning to work quickly and others needing more time due to complications.
- A typical recovery without complications involves resting and using a cushion in the first month, gradually increasing activity in the second month, and feeling more comfortable by weeks 8 to 10.
- It's important to advance your diet slowly to avoid postoperative bowel blockage.

4. **Technical Choices**
- A sphincter-sparing proctectomy can shorten recovery time. Removing the sphincter requires more extensive healing. Discuss all options thoroughly with your surgeon.

5. **Conservative Measures Before Surgery**
- A combination of Salofalk suppositories and Cortifoam foam is effective for controlling bleeding. Some are trying Remicade infusions, though results are still uncertain.

6. **Comfort and Supplies**
- Using a rubber-donut seat cushion and pillows can help with early sitting. Ostomy-supply companies often provide free samples, which can improve comfort.
- Support groups and ET nurses can offer practical tips that might not be covered during hospital stays.

7. **Sexual-Activity Bleeding**
- Some have experienced rectal-stump bleeding triggered by intercourse. It's advisable to seek medical guidance to maintain intimacy without causing bleeding.

8. **Postoperative Complications to Watch For**
- Be aware of pelvic abscesses, which can mimic normal post-surgical pain. Persistent or worsening pain should be checked with imaging and possibly drained.
- Drains that keep filling and infected sites need antibiotics and close follow-up.

9. **Lifestyle Upsides After Removal**
- Many report freedom from daily enemas, pads, and cancer anxiety. They enjoy the ability to sit, exercise, and travel without worry, and even find beach sand less bothersome with a closed perineum.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,456 members.

“Every morning with my coffee, I read here and feel wrapped in warmth - I hardly post, but it still feels like family.”

“Our oncologist literally wrote down the link; they said more patients need this website.”

“This place pulled me out of the dark. I went from lurking to living again.”

“At 3am, someone’s awake somewhere in the world. I’m never alone here.”

Join Free

Popular Topics

Pancaking Issues with Ileostomy Bag at Night
Complications
Colostomy and Air Travel: Seeking Advice and Tips
How do you clean the end of your drainable bag?
Ostomy Day
Need Advice on Managing Odor from Dad's Colostomy Bag
Big Milestone
Black Polyp on Stoma: Seeking Advice and Experiences
Dealing with Noisy Ostomy: Tips and Advice Needed
Leaking Ostomy: Seeking Advice for Belly Button Issues

New Topics

Hello! I'm a very recent ostomate.
Battle of the WiFi
Debilitating Pain after Granulomas treated with Silver Nitrate
Outspoken, outrageous, and newly ostomated — proud mom to a teen son & a rescue wiener who keep me laughing daily.
Colonoscopy Tomorrow: Anxious About Prep with Ostomy
Being Greatful
Anyone taking Gattex?
B. Withers-Be Kind 122
Wearing An Appliance Horizontally
AN ITALIAN BIRD
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑