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41,450 members
Apr 19, 2010

Back Home and Facing New Health Challenges

This topic is about someone who has just returned home after being away for a while. They are dealing with a complex health situation involving malabsorption, an autoimmune digestive disease, and Addison’s disease. Here’s a breakdown of their experience and some supportive advice from others:

- After being away for about a week and a half, the person is now back home.
- Doctors suspect they have a malabsorption disorder along with a confirmed autoimmune digestive disease, though the exact diagnosis is still being determined.
- Since oral steroids might not be effective, their treatment for Addison’s disease has been switched to Solu-Cortef, which is administered through a PICC line. The dosage has been increased to help manage chronic pain and prevent Addison’s crises.
- They underwent a small-bowel follow-through test at the Cleveland Clinic, which involved swallowing barium and having serial X-rays taken. This test, expected to last 10-15 minutes, took 4½ hours because the barium moved quickly through most of the gut but stopped just before exiting the ileostomy.
- The gastrointestinal specialist found this unusual and has ordered more tests, necessitating another visit in a few weeks.
- The person feels relieved to have confirmation that their issues are physical rather than psychological and is grateful for ongoing prayers and support.

Advice and insights from others include:

1. Fellow members offer encouragement, highlighting that getting closer to a clear diagnosis can make the journey less stressful.
2. They express empathy for the upcoming tests, acknowledging they might be unpleasant, and promise to share updates and provide moral support.
See full discusison
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