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Apr 26, 2010

Dealing with Constipation and an Ileostomy

This topic is about dealing with constipation, fecal bypass, and unusual bowel movements when living with an ileostomy or loop colostomy. Here are some insights and advice shared by individuals who have experienced similar challenges:

- One person had a chronically impacted colon and a large parastomal hernia, which made them feel the hard, stool-filled colon. They found that oral laxatives were ineffective because everything exited through the ileostomy. Rectal treatments were also ineffective due to a recto-vaginal fistula.

- They were concerned that retained stool might be causing systemic toxins, leading to symptoms like a persistent foul taste, severe nausea, and extreme fatigue. A temporary doctor suggested using a glycerine suppository through the small opening of the looped stoma, but it did not help.

- After some time, the fistula was repaired, and they chose to convert to a permanent colostomy. Now, no more feces pass through the rectum, although they occasionally pass a mucus plug that builds up over several months.

- They believe that fecal bypass in the earlier loop colostomy happened because stool could descend through the loop opening. They advise others to seek a second surgical opinion if doctors dismiss similar problems.

- Another person with a loop colostomy and rectal leakage, known as "Scary Poop Syndrome," found that using colostomy barrier paste to block the fistula or loop opening prevented feces from exiting the rectum. This self-test suggested that stool was dropping down the distal limb of the loop, not coming from an abscess or tumor.

- This person also had a CT scan that revealed two small-bowel obstructions, showing that imaging can uncover additional mechanical issues even when blocking the fistula alleviates rectal leakage.

- Both individuals stress the importance of seeking a second opinion if surgeons are unresponsive or dismissive, especially if there is ongoing pain, obstruction, or abnormal fecal paths.
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