Since Christmas, if not before (my last hospital visit for this was Sept 2009, when the ileo malfunctions and feces passes through my colon and out of my backside, vagina, and fistula), I have had a very lumpy colon, full of feces (which I can feel easily as my parastomal hernia is so large). I am unable to take anything orally as it would just come through the ileo, or rectally as it would just come through my fistula and vagina... but surely, this can't be good for me - is this not creating loads of toxins in my body which I am unable to expel?
Over this period of time, I have had a terrible taste in my mouth, thought to be gastric reflux (several meds have had no effect), bad nausea up until mid-March, and the most debilitating fatigue. I think that I am now beyond the sphere of my GP, who bless him, just shakes his head and pats my knee!
Needed some medication and my GP is away, so last Tuesday, I saw the locum GP - he suggested that I put a glycerine suppository into the stoma where the loop had been created. I wasn't even sure that there was a real hole, but did manage to do this that evening.
On Friday, I went back to see him to report that the earth hadn't moved, so back to square one!
I am off for a weekend away; the Fibromyalgia Association UK is having a conference and pamper weekend - it will be my only little holiday this year as I am not sure when surgery will be, etc. I am being very brave by going alone, so I hope that there will be others in the same situation there. Will report back afterwards!
Hello,
Wondering if you're still around. I read a post you made regarding the malfunctioning colostomy.
I am having the same issue. I had surgery this January. I am in severe pain and pass fresh feces through my rectum. I've, of course, told my surgeon many times. I've had a CAT scan and it showed nothing. I have very severe rectal pain. Did you ever get your problem resolved?
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You are so right. I will never forget this website and the people who have helped me. I had my reversal in January of 2014. I try and come on this website weekly to see if I can help or encourage other individuals get through the day-to-day process of life.
Hi, yes, I am still 'around,' although I haven't been on the site for many years!
Mine was solved eventually; my fistula was repaired, and I chose afterward to have a permanent colostomy, so I no longer get the fresh stuff in my rectum - although, as the bowel still produces mucus, I do have a mucus plug which I need to pass, and I have been trying now for three and a half years! It's just uncomfortable, though, when I get the urge to 'go'!
I am assuming that yours is a loop colostomy and that is why it is bypassing as it is going down the hole from the loop - can't see why he cannot understand that. Maybe go get a second opinion? Are you in the UK?
Rachel x
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I have described the issue to the surgeon a million times. First, he told us it was normal soon after surgery. But it continued to get worse. Then he sent me to get a ct scan. He thought it might be an abscess or the tumor (that they weren't able to remove) was growing. The ct scan showed none of these scenarios. However, it did show two small obstructions in the small intestine. That was over a month ago.
Now the surgeon won't return my calls. Im furious.
I'm in the U.S.A.
I am on Facebook.