Since Christmas, if not before (my last hospital visit for this was Sept 2009, when the ileo malfunctions and feces passes through my colon and out of my backside, vagina, and fistula), I have had a very lumpy colon, full of feces (which I can feel easily as my parastomal hernia is so large). I am unable to take anything orally as it would just come through the ileo, or rectally as it would just come through my fistula and vagina... but surely, this can't be good for me - is this not creating loads of toxins in my body which I am unable to expel?
Over this period of time, I have had a terrible taste in my mouth, thought to be gastric reflux (several meds have had no effect), bad nausea up until mid-March, and the most debilitating fatigue. I think that I am now beyond the sphere of my GP, who bless him, just shakes his head and pats my knee!
Needed some medication and my GP is away, so last Tuesday, I saw the locum GP - he suggested that I put a glycerine suppository into the stoma where the loop had been created. I wasn't even sure that there was a real hole, but did manage to do this that evening.
On Friday, I went back to see him to report that the earth hadn't moved, so back to square one!
I am off for a weekend away; the Fibromyalgia Association UK is having a conference and pamper weekend - it will be my only little holiday this year as I am not sure when surgery will be, etc. I am being very brave by going alone, so I hope that there will be others in the same situation there. Will report back afterwards!

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