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Aug 18, 2011

Adjusting to Life After Major Surgery: Seeking Advice and Sharing Experiences

This topic is about someone who recently underwent emergency surgery to remove their colon and is now dealing with post-surgery fatigue, fears about returning to physical activities, and questions about water-sport gear. Here’s a summary of their situation and some advice from others who have been through similar experiences:

- The person had a challenging medical history, including a C. diff infection, liver disease, and severe abdominal pain leading to surgery. They also faced complications like a staph infection and steroid-induced diabetes but are now off prednisone and nearly off insulin.

- They are experiencing extreme fatigue and muscle soreness, despite normal medical tests, and are worried about resuming activities like surfing and snow sports. They also feel frustrated with their ostomy and are seeking practical tips for water activities.

Advice and insights from others include:

1. Fatigue and Steroid After-Effects
- Many people experience lingering exhaustion after stopping prednisone, and it can take months to feel strong again. Staying hydrated, eating a balanced diet, and being patient are important.
- It’s common to hit an energy “wall” around three months post-surgery, with many not feeling fully strong until 6–12 months later.

2. General Recovery Encouragement
- Allow yourself to rest and know that strength will return gradually. Maintaining a positive outlook is crucial, as bodies can rebound impressively over time.

3. Returning to Surfing, Kayaking, Skiing, and Other Sports
- People have successfully returned to these activities once fully healed. Some have even created custom stoma guards to protect their stoma during sports.
- Wearing a wetsuit is possible, though getting into it might be awkward at first.

4. Swimming and Hot-Tub Tips
- Most use the same pouching system in and out of water, with some framing the flange with waterproof tape for extra security.
- While wear time might be slightly reduced, many still get several days per wafer change.

5. Recommended Products and Gear
- Hollister New Image two-piece system and other Hollister wafers are recommended for their flexibility and durability in water.
- Esteem Synergy by ConvaTec is also used for water activities without extra precautions.
- Ostomysecrets swim wrap and classic wrap help keep the pouch discreet under swimwear.
- Waterproof medical tape can seal the edges of the flange if desired.
- Custom or commercial stoma guards can prevent pressure from wetsuits or waistbands.

6. Practical Extras
- Look for online communities of surfers with stomas for shared solutions.
- Stay hydrated to help flush out residual medications.
- Gradually rebuild core strength and consider waiting a bit longer before engaging in rough-water surfing.
See full discusison
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