This topic is about managing a large parastomal hernia, which can be quite challenging, especially when it comes to finding ostomy bags that fit well. A parastomal hernia is a bulge around the stoma, and in this case, it's described as being the size of a melon. This can make it difficult to get a good seal with standard ostomy products, leading to issues like odor, leakage, and ballooning. Here are some insights and advice shared by others who have faced similar challenges:
- The stoma diameter is currently 50 mm and still growing, which makes finding the right fit crucial.
- Standard flanges tend to pucker on the curved surface of the hernia, causing problems.
- A hernia belt with a cut-out and maternity-style trousers are currently being used for support.
- Surgical repair isn't an option due to severe heart disease and the need for continuous anticoagulation therapy, with a quoted success rate of only 50%.
Here are some recommendations for better-fitting pouches and flanges:
1. Large-cut pouches/flanges:
- Dansac Nova Maxi can be cut to 90 mm long by 70 mm wide, providing extra adhesive area and a secure fit.
- Coloplast Sensura (standard series) is available up to 60 mm and is reported to have good adhesion.
- Omnigon offers a hernia-specific pouch in Australia that contains aloe vera, which might be worth considering.
2. Reinforcing the seal:
- CliniMed HydroFrame WAF H33 flange extenders work with Hollister and other brands to cover flange puckers.
- SALTS SecuPlast Hydro Security Strips SPH1 can be applied around the flange to enhance security, especially useful for swimming or long wear.
3. General comfort and support:
- Continue using a hernia support belt with a stoma opening, as many find it reduces discomfort and bulging.
- Sleeping on the side opposite the hernia with a pillow for support can also help.
4. Surgical considerations:
- Some surgeons avoid hernia repair or reversal due to the risks involved. If health permits, seeking a second surgical opinion might be beneficial.
5. Travel and supply tips:
- It's a good idea to request extra prescriptions or stock up before long trips or cruises. Flange extenders or security strips can help extend wear time and reduce the need for full changes.
These suggestions come from personal experiences and shared advice from others dealing with similar situations.
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