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Sep 21, 2011

Seeking Advice on Managing Colostomy Complications

This topic is about managing complications that can arise after living with a colostomy for a year. The person in question has faced several challenges, including infections, hernias, and fistulas. Here are some insights and advice shared by others who have experienced similar situations:

- After surgery, complications can occur, such as infections and abscesses. It's important to monitor these closely and seek medical attention if they arise.

- Chronic wound infections and issues like stool leakage into open wounds can be ongoing problems. It's crucial to work with healthcare providers to manage these effectively.

- A large parastomal hernia and a perianal fistula can contribute to other issues, such as urinary incontinence. Planning for surgical repair with a specialist is often necessary.

- It's common to feel anxious about upcoming surgeries, especially if previous experiences have been challenging. Seeking support from healthcare professionals and support groups can be helpful.

- Getting a second opinion from a top specialist can be beneficial. This can ensure that all issues are addressed comprehensively in a single operation.

- Daily infections can be distressing. It's important to follow medical advice and attend regular appointments with healthcare providers, such as stoma nurses.

- While NHS supplies are free, the desire for a pain-free day is understandable. Managing pain and discomfort is a priority for improving quality of life.

- Seeking the most experienced colorectal or hernia surgeon is crucial. Multiple opinions can help prevent further complications.

- Some have found relief from perianal fistulas by converting to a permanent ileostomy. This might be worth considering if other treatments are not effective.

- There are video resources available that can provide educational support.

- If surgery is postponed, managing hernia pain with support garments and analgesics can be an option. It's important to weigh the quality-of-life trade-offs.

- To reduce pouch leakage, products like ileo-gel or gel tablets can thicken liquid output. Using two sachets at once may improve results.

- The Coloplast Sensura system can help ensure a snug fit if weight loss has caused the stoma opening to be oversized.

- For issues like "pancaking," covering the filter on a Welland pouch with a sticker can help. Other methods, like adding a drop of oil or rolled gauze, may be less effective.

- If hospital care is inadequate, writing a detailed letter to the administration can help advocate for better stoma care in the future.
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