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41,436 members
Sep 26, 2011

Life After Choosing a Permanent Ostomy at 18

This topic is about a young person who, at the age of 18, decided to have a permanent ileostomy after experiencing complications with a J-pouch. The J-pouch, which was created in July 2010, led to persistent health issues like abscesses and numerous hospital visits. Eventually, doctors advised that the pouch would not function properly, so in September 2011, it was removed, and a permanent end-ileostomy was created. Just two weeks after the surgery, the individual felt healthier, free of pain, and emotionally relieved, ready to return to college and enjoy life with a positive outlook. They have embraced their stoma, viewing it as a lifelong companion.

Here are some helpful insights and advice shared by others:

1. Keep a positive attitude. Many people emphasize that staying optimistic and accepting your situation is crucial for living well with an ostomy. This mindset can also inspire those around you.

2. Be open and honest about your ostomy. Sharing your experience openly can help reduce any stigma and make it easier for you to adjust.

3. Educate your friends and family. Simple explanations, like saying it’s “just poop from a different place,” can help normalize the situation and encourage support from loved ones.

4. Consider naming your stoma. Giving it a fun name, such as “Little Volcano” or “Stomy,” can be a light-hearted way to connect with and accept it.

5. Look forward to future medical advances. Technology is always evolving, and it’s likely that life for ostomates will continue to improve.

6. Seek support from peer communities. Connecting with others who have similar experiences can provide encouragement and help during your recovery and adaptation process.
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