Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,458 members
May 05, 2012

Surviving Diverticulitis and a Fistula: My Journey with an Ostomy

This topic is about a personal journey with a temporary colostomy following complications from diverticulitis and a bladder fistula. It highlights the challenges faced, the acceptance of the situation, and the hope for an early reversal. Here are some key points and advice shared:

- The journey began with a diagnosis of diverticulitis, which led to severe symptoms and eventually a diagnosis of a fistula between the colon and bladder, along with an abscess.
- Emergency surgery resulted in a temporary colostomy, which was initially met with despair but quickly turned into acceptance.
- After spending eleven days in the hospital, the individual went home with the colostomy, expected to last about six months.
- To manage the colostomy, irrigation was used to regain control and comfort, allowing a switch from a standard pouch to a small cap, which helped with odor, leakage, and clothing fit issues.
- A barium enema was scheduled to assess healing for a potential early reversal, bringing optimism and gratitude for the experience.

Additional insights and advice include:

1. Irrigation Setup:
- A 2-piece Convatec system is used, with a cut-to-fit wafer and an extra-long irrigation sleeve.
- After irrigation, the stoma is covered with an adhesive cap.
- Watching YouTube videos on "colostomy irrigation" can provide helpful demonstrations.

2. Staying Positive and Active:
- Maintaining physical fitness and a positive outlook is encouraged, as it can help with recovery and overall well-being.
- Focusing on family and loved ones can provide motivation during the recovery process.

3. Preparing for Medical Procedures:
- For procedures like a barium enema, it's advised to bring spare pouches or caps, as the contrast liquid can pass quickly.

4. Irrigation Tips:
- Many with sigmoid or descending colostomies can benefit from irrigation, which can improve quality of life by reducing the need for a full-size pouch.

5. Sharing Experiences:
- Personal stories are being compiled by the Hernando Ostomy Association, and writing for magazines can help spread awareness.

6. Alternative Options:
- The BCIR (Barnett Continent Intestinal Reservoir) is mentioned as a no-bag solution for some patients.

7. Mindset:
- Self-perception is important; confidence and cleanliness can make the stoma a non-issue in social situations.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,458 members.

“Every morning with my coffee, I read here and feel wrapped in warmth - I hardly post, but it still feels like family.”

“Our oncologist literally wrote down the link; they said more patients need this website.”

“This place pulled me out of the dark. I went from lurking to living again.”

“At 3am, someone’s awake somewhere in the world. I’m never alone here.”

Join Free

Popular Topics

DJ TJT..
Rugby Player with an Ostomy Aiming for the World Cup
Finding My Rhythm
I hurt my stoma 😳
How do you clean the end of your drainable bag?
So now I’m committed 😬
Introduction
Hernia or Hematoma? Seeking Advice on Stoma Lump
Hair Loss After Proctocolectomy Surgery
Newbie Alert… Simon, an anti-help group dude seeking a help group lol

New Topics

Cauliflower and Ileostomy: Experiences with Blockages?
Beachboy AI
Indentation in Skin Next to Stoma
Back to Exercise and Update
Meeting up
B. Withers - Be Kind 141
Meanwhile, back at the beach
Emptying the Pouch: Best Positions?
EAT HEARTY
Leaking Ostomy: Seeking Advice for Belly Button Issues
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑