This topic is about a personal journey with a temporary colostomy following complications from diverticulitis and a bladder fistula. It highlights the challenges faced, the acceptance of the situation, and the hope for an early reversal. Here are some key points and advice shared:
- The journey began with a diagnosis of diverticulitis, which led to severe symptoms and eventually a diagnosis of a fistula between the colon and bladder, along with an abscess.
- Emergency surgery resulted in a temporary colostomy, which was initially met with despair but quickly turned into acceptance.
- After spending eleven days in the hospital, the individual went home with the colostomy, expected to last about six months.
- To manage the colostomy, irrigation was used to regain control and comfort, allowing a switch from a standard pouch to a small cap, which helped with odor, leakage, and clothing fit issues.
- A barium enema was scheduled to assess healing for a potential early reversal, bringing optimism and gratitude for the experience.
Additional insights and advice include:
1. Irrigation Setup:
- A 2-piece Convatec system is used, with a cut-to-fit wafer and an extra-long irrigation sleeve.
- After irrigation, the stoma is covered with an adhesive cap.
- Watching YouTube videos on "colostomy irrigation" can provide helpful demonstrations.
2. Staying Positive and Active:
- Maintaining physical fitness and a positive outlook is encouraged, as it can help with recovery and overall well-being.
- Focusing on family and loved ones can provide motivation during the recovery process.
3. Preparing for Medical Procedures:
- For procedures like a barium enema, it's advised to bring spare pouches or caps, as the contrast liquid can pass quickly.
4. Irrigation Tips:
- Many with sigmoid or descending colostomies can benefit from irrigation, which can improve quality of life by reducing the need for a full-size pouch.
5. Sharing Experiences:
- Personal stories are being compiled by the Hernando Ostomy Association, and writing for magazines can help spread awareness.
6. Alternative Options:
- The BCIR (Barnett Continent Intestinal Reservoir) is mentioned as a no-bag solution for some patients.
7. Mindset:
- Self-perception is important; confidence and cleanliness can make the stoma a non-issue in social situations.
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