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Feb 15, 2009

Why Don't Ostomy Supplies List Ingredients?

This topic is about the concern that many people with ostomies have regarding the lack of ingredient information on ostomy supply packages. These supplies, such as wafers, flanges, and baseplates, are in constant contact with the skin, yet the exact materials used are often not disclosed. Here are some insights and advice on this matter:

1. Common Wafer/Flange Composition:
- Most adhesive barriers are made from hydrocolloid and pectin.
- Hydrocolloids, like agar-agar and carrageenan, are natural gelling agents from seaweed. They form a gel-like adhesive when mixed with water. Heat, baths, and body enzymes can cause them to break down faster, making them tackier or less effective in certain conditions.
- Pectin, derived from citrus peel or apple pomace, helps stabilize the hydrocolloid and improve how long the barrier lasts.
- Some flanges also include natural oil-based gums and citrus-peel components.

2. Possible Skin Reactions:
- Allergies to seaweed-derived gums, citrus, or pectin can cause itching, rashes, blisters, or sores around the stoma.
- Different brands have slightly different formulations, so reactions can vary.

3. How to Investigate or Prevent Reactions:
- Contact the manufacturer for a material safety data sheet (MSDS) or ingredient list. They may also suggest alternative products.
- Perform a home patch test by taping a small piece of the wafer to your inner forearm for 48 hours. Any irritation could indicate a potential problem with that product.
- Consult a GP or dermatologist for formal allergy testing, including tests for seaweed-based hydrocolloids and citrus-derived pectin.

4. Extending Wafer Life & Reducing Urine Acidity (Helpful for Urostomates):
- Drink more neutral or alkaline fluids like water, tender coconut water, diluted buttermilk, and citrus juices (unless advised otherwise).
- Limit tea, coffee, and cow’s milk to 1–2 cups per day.
- Eat high-fiber, mainly vegetarian meals. If you eat meat, keep protein intake to about 1 gram per kilogram of body weight daily.
- Avoid high-sugar carbonated drinks and milk-based sweets, especially on an empty stomach. Lower acidity can help the barrier last longer and reduce the risk of uric-acid stones.

5. If only one ostomy supplier is available in your country and you have persistent allergies, your healthcare team may need to advocate for alternative products or barrier wipes to protect your skin.
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