This topic is about a parent seeking support and connections for their 8-year-old son who has an ileostomy. The child has had the ileostomy since he was 5 years old due to a condition where his large intestine has no nerves. The family is looking for others who can share their experiences and offer support. Here are some helpful suggestions and insights:

1. Consider reaching out to local pediatric ostomy or disability support groups. Your surgeon, stoma/ET nurse, or the hospital's child-life department might be able to help you find groups where your son can meet peers in person.

2. Look into sleep-away or day camps specifically designed for young ostomates:
- In Canada, the "Ostomy Youth Camp" offers activities, education, and support from ET nurses and counselors. It is known for fostering strong peer connections and building confidence.
- If you are outside Canada, such as in New Zealand, contact your national ostomy association or search online to find out if a similar camp is available.

3. Stay informed about future surgical options. Some adults with ileostomies eventually switch to a continent procedure like a Kock pouch, depending on factors such as scar tissue. Keeping up with evolving techniques might provide hope for your son.

4. Connect with adults who are willing to correspond. Some forum members with 1–2 years of ileostomy experience have offered to talk with or mentor your son.

5. For those interested in volunteering at camps, information and sign-up forms can be found through Ostomy Canada magazine and the UOA Canada website. Prospective volunteers can inquire there for more details.