Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,428 members
Jan 02, 2013

1.5 Months Post-Ileostomy: A Bittersweet Transition

This topic is about life after an ileostomy reversal, which involves creating a J-pouch. It explores the emotional and physical journey of someone who has undergone this procedure after living with ulcerative colitis and an ileostomy for several years. Here are some insights and advice shared by the community:

- The person is about a month and a half past their ileostomy reversal. They had lived with ulcerative colitis and an ileostomy, which they affectionately named "Frank," for five years. While grateful that the stoma saved their life, they describe the experience as a personal struggle, dealing with constant worry, finding the right pouch system, adhesive itch, and skin damage.

- After the reversal, they have experienced less pain and urgency, but life still doesn't feel completely normal. They've developed pouchitis, which brings up feelings that the journey is never truly over.

- Emotionally, they are dealing with large abdominal scars, fatigue from years of illness, and frustration that doctors predicted an almost trouble-free life post-surgery, which hasn't been the case.

- They plan to donate leftover ostomy supplies and are considering a career in medical assistance, specifically in gastrointestinal care, to help future patients. They express admiration for the resilience and humor of those who have lived with an ostomy.

Advice and insights from the community include:

1. Living with a chronic illness means facing ongoing challenges, both physical and mental. It's important to find blessings in the journey and remember that you are always welcome in ostomy support spaces, even after a reversal.

2. Some people find that a permanent ostomy offers a pain-free, medication-free life. If dealing with pouchitis and frequent doctor visits becomes too exhausting, returning to an ostomy might restore quality of life.

3. Staying connected with fellow patients can provide empathy, honest conversations, and hope, whether or not you currently have a stoma.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,428 members.

“I mostly read and still feel like I belong.”

“Doctors took notes; they want others to find this website.”

“From midnight blowouts to big wins, there’s always a hand to hold.”

Join Free

Popular Topics

First Trip to Las Vegas Post-Ileostomy: Tips and Advice?
Hello from north of England
Typical kiwi
Leaking Ostomy: Seeking Advice for Belly Button Issues
Introduction
Newbie (Simon) that is so happy to have found this place
Bowel Cancer
Emptying the Pouch: Best Positions?
Urgent: Help Needed to Preserve Ostomy Bag Choice
Adjusting to Solid Foods Post-Surgery: Tips and Experiences

New Topics

Caring
B. Withers -Be Kind 107
B. Withers-Be Kind 136
Split Skin
Update from kerry
Pristiq and Ileostomy: Will It Work for Me?
Lubricating Deodorant Liquid and Plumbing Safety
🔮 These are the Horoscopes for the week of September 22, 2025
Fresh oranges
Anything is possible
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑