This topic is about feeling overwhelmed after being discharged from the hospital, dealing with a leaking fistula, fatigue, and concerns about medication. Here are some helpful insights and advice to consider:
- Emotional and Spiritual Support
- Many people find comfort in prayer, faith, and talking to a higher power to lift their spirits.
- Joining a local or online support group or visiting a forum's chatroom can be a great way to share your feelings and connect with others.
- Consider attending the United Ostomy Association of America (UOAA) National Conference in Florida this August for education and peer support.
- Possible Medication Side Effects
- Ciprofloxacin (Cipro) can affect protein metabolism and might make you feel unwell; using it excessively could increase fatigue and malaise.
- It's important to review all your medications and their side effects with your doctor or pharmacist, as they might be contributing to feeling down.
- Self-Advocacy in Care
- Take the time to research your diagnosis, medications, and possible alternatives. Don't hesitate to ask questions and seek second opinions if needed.
- If the fistula leakage continues, make sure to discuss this with your surgical team and advocate for closure.
- Pouching and Leakage Tips
- Ensure that all skin surfaces are completely dry before applying the wafer, as any moisture or urine can prevent proper adhesion and cause leaks.
- Recovery Expectations and Mindset
- Remember that healing takes time. Feeling weak and discouraged is normal less than a month after surgery.
- Allow yourself the time to rest and recover gradually. Many people report it takes several months to feel like themselves again.
- Hydration and Nutrition
- Continuous output can lead to dehydration, so it's important to drink fluids with electrolytes, like Pedialyte, regularly.
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