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41,427 members
May 06, 2015

THE COST TO ME

This topic is about the financial and emotional impact of living with an ostomy. It explores the various "costs" associated with having an ostomy, both in terms of money and personal feelings. Here's a breakdown of the insights and advice shared:

1. Financial Impact:
- In the UK, the National Health Service (NHS) covers the cost of ostomy supplies, which means individuals have minimal personal expenses.
- In the USA and many other countries, people often have to pay for these supplies themselves, and the costs can be quite overwhelming.

2. Emotional Impact:
- Beyond the financial aspect, there is a sense of loss regarding dignity, confidence, and even a part of one's body.
- Negative emotions can sometimes overshadow positive thoughts, and the poem shared by the author ends on a somber note to reflect these feelings, although they often include uplifting verses elsewhere.

3. Additional Insights:
- Poetry is a tool the author uses to manage negative thoughts, and while the poem may not always end positively, self-reflection and feedback from others help balance this.
- The author is grateful for the NHS in the UK, which alleviates the financial burden of ostomy care.

4. Advice and Encouragement:
- Maintaining Confidence and Dignity:
- Some long-term ostomates have found that their confidence has increased over time. They no longer have to worry about finding a bathroom urgently, and their health and independence have improved.
- A positive mindset is important. Focus on small positives, practice gratitude, and view the ostomy pouch as a symbol of survival.

- Coping With Negativity:
- Creative outlets like poetry and humor can help manage dark thoughts by externalizing them.
- Sharing experiences and reading success stories on forums can help counter feelings of isolation and self-doubt.

- Assistance With Supplies in the USA:
- It's suggested to post a request on forums for help with supplies to reach more people.
- Some members have privately offered spare supplies to those without insurance and encouraged others to do the same.

- General Encouragement:
- Expressing emotions, even negative ones, can be productive and inspire others. Community feedback can reinforce resilience and hope.
See full discusison
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