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May 11, 2011

Questions for surgeon before ileo consult?

The topic is about preparing for an ileostomy consultation, which can be a daunting experience filled with fear and uncertainty. If you're facing this situation, here are some helpful insights and advice to consider:

1. Mind-set & Decision-Making
- Try to manage anxiety by focusing on the potential for a better quality of life after the procedure.
- Trust in your medical team once you've gathered all the necessary information.
- Many people find that their lives improve significantly after the surgery and rarely regret the decision.

2. Questions/Issues to Raise in the Consultation
- Discuss the exact placement of the stoma, considering where your clothing sits, to find the most comfortable and discreet spot.
- Ask about the possibility of a future reversal or J-pouch construction if the ileostomy is temporary.
- Understand the long-term follow-up care, including which symptoms or complications should prompt a call to your healthcare team.
- Inquire about any required medications post-surgery, especially if you have autoimmune issues, and who will manage them.

3. Preparation for Surgery & Recovery
- Organize a support team of family, friends, and healthcare providers.
- Prepare by stocking up on freezer meals, arranging household help, and gathering entertainment like books and music for at least 4–6 weeks of recovery, as some people may need up to 3 months.
- Set small daily goals to help rebuild your strength and confidence.

4. Living With an Ileostomy
- Most people find they have few practical limitations and often forget about the appliance once healed.
- Experiment with different wafers, pouches, and belts until you find what works best for you, much like finding the right pair of shoes.
- Consider using products like Na`Scent ostomy deodorizer, which is praised for eliminating odor and boosting confidence.

5. Building Your Ongoing “Medical Team”
- Keep in regular contact with your gastroenterologist, surgeon, and ostomy nurse, and ensure you understand every aspect of your care.
- Annual scopes and proper medications are crucial to prevent future complications.
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