This topic is about managing a condition known as "phantom rectum syndrome," which can occur when someone has both a colostomy and a urostomy. This syndrome involves experiencing pain as if the removed rectum is still present and causing discomfort. Here are some insights and advice shared by someone dealing with this condition:

- The pain from phantom rectum syndrome can be severe and constant, often described as torturous.
- After consulting with several specialists, a neurologist prescribed an off-label opioid, typically used for treating heroin addiction. When this medication was combined with legal cannabis (in this case, smoked marijuana in Canada), the pain became more manageable, leading to an improved quality of life.
- The person sharing this experience is interested in hearing from others who have phantom rectum syndrome to compare experiences and share effective strategies.

Additionally, here are some practical tips for managing life with both a colostomy and a urostomy:

1. Always carry extra urostomy bags when visiting the hospital, as other patients might need emergency supplies.
2. Before applying urostomy pouches, warm them with a hair-dryer. This helps soften the adhesive, which can improve the seal.
3. If you find yourself waiting for a long time at clinics and are concerned about your appliances over-filling, politely inform the reception staff. You might say something like, "I’m wearing two bags and can’t control when they fill." Sometimes, showing or "flashing" the pouches can help you get moved ahead in the queue.