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Jan 11, 2022

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This topic is about living an active life, particularly playing golf, with a new ileostomy. The author, who is 50 and dealing with stage-4 cancer, recently had surgery that resulted in a permanent ileostomy. They are seeking advice on managing their ileostomy while continuing to enjoy activities like golf and possibly skiing. Here are some helpful insights and tips shared by others:

1. **Managing Frequency and Diet:**
- It's common to empty the pouch 6-10 times a day, depending on diet, hydration, and activity level.
- Eating foods that thicken output, like bananas and peanut butter, before golfing can help. Avoid foods that pass quickly through the system a few hours before playing.
- Alcohol, especially wine, can increase output, so sticking to water on the course is advisable.

2. **Timing and On-Course Logistics:**
- Empty the pouch right before starting a round of golf. Try to time meals so the pouch remains quiet for a few hours.
- Use on-course restrooms or find a discreet spot if needed. Some golfers keep a large, lidded disposable cup in their cart for emergencies.
- Many golf courses have portable toilets, making it easier to manage mid-round emptying.

3. **Medication to Slow Output:**
- Some people take half a tablet of Imodium (loperamide) about an hour before golfing to reduce output. It's important to discuss this with a healthcare provider.

4. **Confidence and Activity Level:**
- Many people with ileostomies continue to enjoy various activities, including golfing, walking, weight training, and more. Planning and a positive attitude are crucial.
- While occasional "tree visits" might happen, they are rare. One golfer mentioned only having two incidents in 20 years.

5. **Equipment and Skin Care:**
- A 2-piece Hollister system is effective for many, but it's important to ensure a good seal and address any skin irritation with barrier wipes or rings.
- Check the fit of the appliance before engaging in strenuous activities to prevent leaks.

6. **Inspirational Examples:**
- Professional golfer Al Geiberger and late PGA pro Art Wall played with ileostomies.
- NFL kicker Rolf Benirschke returned to professional sports after ileostomy surgery.
- Long-term ileostomates emphasize understanding stoma patterns and not letting the appliance control their lives.

7. **Skiing with an Ileostomy:**
- While no detailed ski reports were shared, the same principles of timed emptying, a secure pouching system, possible use of Imodium, and knowing restroom locations should make skiing possible.
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