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May 12, 2023

Managing Wind with an Ileostomy

This topic is about the experience of feeling the urge to pass gas rectally after having an ileostomy. This can be a puzzling sensation for those who have undergone the procedure, especially since the large bowel is no longer in use. Here are some insights and advice shared by others who have experienced similar feelings:

1. It's quite common for surgeons to reassure patients that feeling the urge to pass gas or even having a sensation of needing to poop, often referred to as "phantom butt syndrome," is normal after an ileostomy. This is because any remaining bowel segments and nerves can still trigger these sensations.

2. Some people with an ileostomy do experience a small, actual fart every few weeks or months. However, most of the gas exits through the stoma and collects in the pouch.

3. If you notice that rectal gas becomes frequent, painful, bloody, or has an unusually foul smell, it's a good idea to have it checked by a medical professional.

4. It's typical for the pouch to inflate due to gas from the stoma. Here are some ways people manage this:
- Identify and limit foods that trigger gas for you. Common culprits include high-fiber foods like corn on the cob, certain fruits, vegetables, and dairy.
- Some find that probiotics help reduce intestinal gas, though their effectiveness can vary from person to person.

5. Keep in mind that your digestive patterns and tolerance to different foods can change over time, so you might need to adjust your diet periodically.

6. Many find that using humor and having open discussions about these bodily changes can help normalize the experience and reduce any anxiety.
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