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May 29, 2023

Have Interstitial Cystitis and Need My Colon Removed

Topic Explanation
The forum discussion revolves around managing interstitial cystitis (IC) and the use of a TENS unit for a torn gluteal muscle in the context of having an ileostomy or a J-pouch. The original poster (OP) is seeking advice on how to wear TENS unit electrodes without aggravating their condition and how to manage IC symptoms post-surgery. They also inquire about the compatibility of clothing and wraps with their medical needs.

Advice and Insights

1. Managing IC with Surgeries and Medications:
- IC can be irritated by surgeries, including the use of catheters and medications administered during and after surgery.
- It's important to consider what currently helps in calming IC symptoms when planning for surgery.

2. Using TENS Unit with Ileostomy or J-Pouch:
- Place the electrode pads on the affected area while getting ready, then cover with a soft, non-irritating wrap.
- Attach the wires to the electrode pads under the wrap to avoid interference with clothing.

3. Wraps and Clothing:
- There are soft, non-irritating wraps available that can be worn over the electrodes. Some brands like Ostomy Secrets offer suitable options.
- High-waisted pants may cause discomfort; lower jeans or skirts that sit below the navel might be more comfortable.
- Ensure that the stoma is not pressed by clothing to avoid additional pain.

4. Electrode Placement and Pain Management:
- The electrodes should be placed in a way that does not aggravate the tender gluteal area.
- The wrap should not be too tight to ensure the TENS unit can effectively manage pain.

5. Considerations for Surgery:
- The decision for an ileostomy or J-pouch may be influenced by other health conditions like indeterminate colitis or the risk of Crohn's disease.
- Quality of life considerations are crucial, especially in managing pain and avoiding the exacerbation of IC symptoms.

6. Stoma and Clothing Compatibility:
- The stoma does not necessarily need to be covered by clothes, but care should be taken to ensure that clothing does not press on the stoma or cause discomfort.
- Lower-waisted clothing might be more suitable to avoid pressure on the stoma and the bladder.

7. Personal Experiences:
- Some individuals with IC have had their bladder removed and now
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