This topic is about managing interstitial cystitis (IC), chronic gluteal pain, and preparing for a future ileostomy or J-pouch surgery. The person sharing their experience is dealing with IC and has been advised to have their colon removed, which may involve an ileostomy or possibly a J-pouch. They also have a chronic tear in their gluteal muscle, causing constant pain that is managed with a TENS unit. Here are some of their concerns and the advice they received:

- They are worried about whether IC symptoms might worsen after abdominal surgery. Surgery can indeed trigger IC flares, often due to catheters, IV medications, and new oral drugs. It's important to inform the surgical team about any existing IC protocols and continue using any current bladder-calming treatments if possible.

- They are concerned about how to position or cover the stoma without causing discomfort to the tender gluteal area or interfering with the TENS electrodes. Soft, low-compression ostomy wraps are available, and one member can provide a link to a very soft, non-irritating version. OstomySecrets.com offers a variety of light ostomy wraps and bands that sit at different heights, and similar options can be found by searching "ostomy wrap."

- For electrode placement with an ostomy, it's suggested to place the electrode pads on the upper buttocks first, then pull the wrap over them, and finally connect the TENS wires under the wrap. This helps keep the pads stable and reduces clothing friction.

- They are also concerned about whether tight or high-waisted garments are necessary over a stoma. High-waisted pants are not mandatory. Many people position the wafer or appliance above low-rise waistbands or use wraps that hold the pouch while allowing jeans or skirts to sit below the navel. The key is to avoid direct, sustained pressure directly under the stoma, and soft or adjustable bands can help protect that area.

- They are looking for a specific name or link for a soft, non-constricting wrap that could fit above low-rise pants, as they must avoid any belt or wrap pressure on the painful glute and sensitive bladder area.

- They are considering an ileostomy due to indeterminate colitis and numerous polyps, but a J-pouch is considered risky due to possible Crohn’s involvement. One member with IC who ultimately had their bladder removed and now has a urostomy emphasizes that IC alone is not a reason for colon removal, suggesting clarification with physicians about the separate indications for surgery.