This topic is about a person who experienced a challenging recovery after leaving the hospital early following a significant medical procedure. They had a massive pelvic bleed and later underwent surgery to remove a rectal stump, which led to a painful recovery. Here are some helpful insights and advice shared by others who have been through similar experiences:
1. Post-operative positioning:
- Avoid sitting until your surgeon gives the go-ahead, as sitting too soon can slow down healing.
- When sitting is necessary, use a donut or specialized cushion to ease discomfort. Pain typically improves over time, ranging from days to weeks.
2. Choosing the right specialist for rectovaginal fistulae:
- If colorectal surgery doesn't resolve the issue, consider consulting a uro-gynaecologist who specializes in complex pelvic-floor repairs. They may offer solutions for durable closure by reconstructing the recto-vaginal wall.
3. Managing infection and wound care:
- Continue with warm saline (salt-water) washes, take prescribed antibiotics, and keep the area clean and dry.
- Be vigilant for signs of fever or increased drainage, and contact your surgical team immediately if these occur.
4. Healing expectations:
- Many people report being pain-free and able to sit normally within 2 to 8 months after rectum or anal removal. The initial weeks can be quite uncomfortable, but this usually improves.
- It's common to experience a phantom urge to defecate and minor discharge for months or even years, especially for those with Crohn’s disease.
5. Adjunct therapy suggestion:
- Some have found success with ozone therapy for treating fissures and skin infections. This involves using a home ozone generator for 30 to 60-minute sessions, combined with antibiotics. However, this method is anecdotal, so it's important to seek medical advice before trying it.
6. Emotional support:
- Many people have shared similar experiences of severe pain and prolonged healing. They emphasize the importance of persistence, asking detailed questions during medical consultations, and seeking support from peers who understand what you're going through.
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