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Jul 27, 2023

What to Expect After Ileostomy Reversal - Seeking Advice and Experiences

The topic at hand is about what to expect after an ileostomy reversal, focusing on quality-of-life concerns and preparations. This involves a patient who is preparing for the reversal of an ileostomy, which was initially performed after a rectal tumor resection. The patient is eager to understand what life will be like post-surgery and how to prepare for it. Here are some helpful insights and advice:

1. Make sure to have a clear understanding of your anatomy and options by discussing them thoroughly with your surgeon or physician assistant. It's important to know if your sphincter is intact, as this will influence whether you opt for a reversal or consider a permanent ostomy.

2. Consider the possibility of keeping the stoma. Many people find that modern pouching systems are easy to manage, requiring only a couple of changes per week. This might offer a better quality of life compared to dealing with potential post-reversal issues like urgency or incontinence.

3. Be aware of potential issues with a J-pouch or neo-rectum. Some individuals experience frequent bowel movements, nighttime accidents, and the need for pads. Weigh these risks against the predictability and convenience of an ostomy.

4. Prepare for a potentially challenging early recovery period after the reversal. You might experience more postoperative pain than you did with the initial ileostomy surgery due to adhesions and abdominal soreness.

5. Incontinence and "clustering," which are multiple urgent bowel movements in quick succession, are common initially. Following a GI soft or low-fiber diet and timing your meals carefully can help reduce accidents. When you feel the urge to go, do so immediately.

6. Start pelvic-floor exercises now. Perform Kegel-type contractions at least ten times a day. Walking a mile or more daily and engaging in light exercise can improve your recovery outcomes.

7. Request a referral from your healthcare provider to see a pelvic-floor or colorectal physical therapist. Structured therapy before and after the reversal can help strengthen muscles, teach relaxation and coordination techniques, and reduce postoperative urgency.

8. Keep in mind that radiation and chemotherapy can complicate tissue healing and increase the risk of Low Anterior Resection Syndrome (LARS). Consider these factors when making decisions and setting expectations for your recovery.
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