This topic is about a person whose husband is facing a challenging medical situation. He has cirrhosis and recurrent rectal cancer, and the doctors have recommended a specific surgery called an abdominoperineal resection (APR) with a permanent colostomy as the only curative option. However, this surgery comes with significant risks due to his cirrhosis, including a 1-in-4 chance of not surviving the operation. Even if he does survive, there could be serious issues with healing the wound left after removing the rectum and anus. The couple is understandably frightened and is seeking advice or reassurance from others who have been in similar situations.
Here are some pieces of advice and insights shared by others:
1. Seek additional surgical opinions:
- It's important to get a second opinion from a colorectal center with extensive experience in APR, especially given the risk factors like cirrhosis and prior radiation.
2. Consider Hyperbaric Oxygen Therapy (HBOT) and bio-engineered grafts:
- Some people have found success in healing perineal wounds with HBOT and applications of GraphX, a human placental/amnion graft. Starting these treatments early might reduce healing time.
3. Explore robotic or laparoscopic surgery options:
- A robotic-assisted APR can result in smaller abdominal scars compared to a large mid-line incision. Although a scar on the buttocks is inevitable, it becomes less bothersome once healed.
4. Understand healing timelines:
- For wounds affected by severe radiation, complete healing might take about nine months. However, this time could be shorter if advanced therapies are approved early.
5. Maintain a positive psychological outlook:
- Keeping a positive mindset and viewing the colostomy as a life-saving measure can help both the patient and their partner cope with the situation.
6. Utilize practical support resources:
- Colostomy UK offers a 24-hour Freephone Helpline staffed by people with ostomies, providing real-time, experience-based advice, especially useful within the UK health system.
7. Accept the permanent colostomy:
- Many people find that once healed, managing the stoma is generally straightforward and preferable to living with cancer pain or the risk of death.
Products and services mentioned include GraphX for wound closure, Hyperbaric Oxygen Therapy, and the Colostomy UK Helpline.
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