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Oct 20, 2023

Seeking Advice and Support After Permanent Colostomy

This topic is about a 44-year-old man who has recently had surgery for a permanent colostomy after dealing with rectal cancer for a year. He is seeking advice and support from others who have gone through similar experiences to help him adjust to life with his new stoma. Here are some helpful insights and advice shared by others:

1. Consider colostomy irrigation. It's worth discussing with your surgeon or stoma nurse to see if it's suitable for you. Regular irrigation can help minimize concerns about leaks, odors, and frequent pouch changes, making it easier to maintain an active lifestyle.

2. Take steps to prevent a parastomal hernia:
- Avoid lifting heavy objects and try to brace yourself when coughing or sneezing.
- Start using a supportive stoma belt early on. While not guaranteed, it might help reduce the risk of hernias. Some people have mentioned brands like Nu-Hope Corp. support belts.
- Keep in mind that if a parastomal hernia does occur, it often requires surgery to correct, and successful repairs can be challenging.

3. Be aware that your stoma may change shape during the initial healing period. This means you might need to adjust your appliances as these changes occur.

4. Understand that much of the learning process happens when you first start changing your own appliance. Be ready for some trial and error, and don't hesitate to ask for help when you need it.

5. Remember that there are community members who are more than willing to offer one-on-one support and share additional tips through private messages or email.
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