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Oct 28, 2023

Considering a Stoma for Continence - Seeking Advice and Experiences

This topic is about considering a stoma, specifically a colostomy, as a solution for managing fecal incontinence. The person sharing their story has dealt with lifelong incontinence and has tried various treatments with limited success. They are now exploring the option of a stoma to improve their quality of life and are seeking advice from others who have been through similar experiences.

Here are some insights and advice from those who have chosen this path:

1. Many people who opted for a colostomy report significant improvements in managing incontinence, describing the change as "life-changing" and "beyond belief" compared to dealing with anal leakage.

2. There is an initial learning curve when adjusting to life with a stoma, but with the help of a stoma nurse, most people adapt quickly.

3. It's a good idea to contact ostomy product manufacturers for free samples of pouches, barrier rings, powders, pastes, wipes, and deodorants. This helps in finding the best products for your skin and stoma.

4. Regular visits to an ostomy nurse are important for getting tips on fitting and skin care. Proper education can prevent leaks and skin irritation.

5. A stoma doesn't cure incontinence but relocates the output to a manageable site on the abdomen, eliminating urgency and accidents.

6. With a colostomy, you can consider colostomy irrigation, which involves flushing the colon every 24–48 hours. This often results in no output during the day, making life simpler.

7. Some patients experience relief from anal or lower-colon pain once stool no longer passes through the rectum.

8. Regarding insurance and coverage:
- In the USA, it's recommended to check individual insurance policies, as most cover surgery and supplies when medically necessary.
- In the UK, the National Health Service provides surgery and supplies free at the point of use, with private insurance used mainly for faster access.

9. After the initial healing period, many patients return to normal activities such as going out, traveling, and exercising without the fear of accidents. They encourage others to embrace their new life with confidence.
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