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Dec 28, 2023

What do I ask the surgeons about a possible reversal?

This topic is about preparing for an ileostomy reversal, which is a surgical procedure to reconnect the small intestine to the rectum after an ileostomy. The person in question had an emergency end-ileostomy due to severe infections and is now considering a reversal. They are looking for guidance on what to ask their surgeon during an upcoming consultation. Here are some key points and advice to consider:

1. **Eligibility and Expectations**:
- Confirm your overall eligibility for the reversal.
- Discuss expected bowel movement frequency and how it might affect your quality of life.

2. **Health Risks**:
- Inquire about any cancer risks associated with the reversal.
- Ask about the causes and prevention of post-reversal inflammation, known as pouchitis.

3. **Surgical Options**:
- Understand the pros and cons of stapled versus hand-sewn anastomosis, including the risk of developing a stricture.

4. **Stoma and Reversal Feasibility**:
- Clarify whether your stoma is a loop or end ileostomy, as this affects the ease of reversal.

5. **Consultation Preparation**:
- Prepare a concise list of questions for your surgical consultation.
- Ask about the hospital's post-operative infection and complication rates, and request statistics on outcomes for previous reversal patients.

6. **Lifestyle Changes**:
- Discuss realistic lifestyle changes post-reversal, including diet, bowel movement frequency, urgency, and any possible restrictions.
- Consider contingency plans if bowel frequency exceeds estimates.

7. **Quality of Life Evaluation**:
- Compare your current quality of life with the ileostomy (10–12 bag empties daily) to the potential post-reversal scenario (up to 6 bowel movements).

8. **Current Ileostomy Care**:
- Use foods like bananas, applesauce, peanut butter, potatoes, and rice to thicken output.
- Consider soluble-fiber supplements like psyllium husks.
- Use generic Imodium (loperamide) after breakfast and supper to manage output.

9. **Appliance Management**:
- Warm silicone rings properly, limit the use of powder, and secure the baseplate with tape to reduce leaks.

10. **Support and Resources**:
- Explore resources like the United Ostomy Associations of America website (uoaa.org) and local ostomy support groups for education and peer experiences.

These points can help guide your conversation with your surgeon and prepare you for the next steps in your journey.
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