This topic is about living long-term with a rectal stump after having an ileostomy, which is often done for conditions like ulcerative colitis. The main concerns are the risks involved, how to monitor the situation, and deciding if or when the stump should be removed. Here are some insights and advice from people who have been through similar experiences:

1. Many people choose to keep their rectal stump after being advised that reconnection or removal are major surgeries. They report living well for many years, dealing only with mucus discharge and occasional pain that usually goes away on its own. Regular check-ups with a doctor are important to ensure everything is okay.

2. Disuse proctitis is a common issue because the stump is no longer active. If you experience persistent mucus and blood, it could indicate complications like Crohn’s disease, dysplasia, or cancer. If medication doesn’t help and quality-of-life issues arise, such as constant leakage or embarrassment, removal of the stump might become necessary.

3. One person kept a 6-inch stump from 2016 to 2023. They experienced continuous bloody mucus and had concerns about Crohn’s disease and cancer, which led to the decision to have the stump removed. The recovery was significant but manageable. It’s important to consider your health status and age, as younger people tend to heal faster.

4. Another person retained their stump from 1995 to 2021 after emergency surgery for ulcerative colitis. They had annual scopes, and eventually, abnormal cell growth was found, leading to an elective removal of the stump. Despite the major surgery, they had a smooth recovery and felt more at ease afterward.

5. General advice includes:
- If the stump isn’t causing problems, many prefer to leave it as is.
- Keep up with routine surveillance to catch any changes early.
- Consider your individual disease history, symptoms, and how you feel about further surgery.
- Consult with colorectal specialists, as experiences can vary greatly, and there is no one-size-fits-all solution.