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Feb 16, 2024

Ovarian Cyst and Stoma Issues - Seeking Advice

This topic is about someone who has been living with a stoma for 20 years and recently discovered a 6 cm ovarian cyst during a stoma revision surgery. Since then, she has been experiencing increasing pelvic pain and occasional issues with stoma function. She is looking for advice from others who have managed an ovarian cyst while also living with a colostomy or ileostomy, as most information she finds online focuses on ostomies created for gynecological diseases rather than the coexistence of both conditions.

Here are some insights and advice shared by others:

1. Ongoing tests are being conducted to ensure the cyst is benign.
2. The pain feels similar to an intestinal blockage but occurs even when the stoma output is normal, and eating seems to worsen it.
3. Although the cyst is on the left ovary, the pain is stronger on the right side, which might be referred pain.
4. Surgery to remove the cyst would be complex, requiring assistance from her previous colorectal surgeon.
5. It is common to attribute new symptoms to stoma output issues, making it challenging to find information specific to this situation.

Advice and insights from others include:

- Ovarian cysts can cause severe pelvic pain and cramping, especially before or during a rupture, and the pain may be referred to the opposite side.
- Not every new symptom is related to the ostomy; consider gynecological causes as well.
- It is important to arrange an ultrasound and follow up with a gynecologist promptly. If the pain becomes intense, visiting the emergency department is advisable.
- When a cyst ruptures, the fluid released can cause significant pain in the pelvic cavity.
- Multiple abdominal surgeries can result in scar tissue that complicates access to reproductive organs, so coordinating any cyst surgery with the colorectal/ostomy surgeon is wise.
- Some individuals have found relief from chronic pain and fibroids through ovary removal or a total hysterectomy.
- Shared experiences include having only one ovary, losing an ovary to torsion, and experiencing cyst-related ovulation pain, highlighting that cyst pain patterns can vary widely.
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