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41,428 members
Mar 05, 2009

You know when you've just had one of those really weird days?

This topic is about the unique experience of undergoing a colonoscopy when you have an ostomy, specifically an Indiana pouch and a urostomy. The person shares their 24-hour journey, which includes some unexpected challenges and practical lessons learned along the way.

- For bowel preparation, they used two sachets of Picolax but didn't follow the recommended timing. This led to a night of continuous watery output, which leaked through the pouch filter.

- The journey to the hospital was chaotic due to snowfall, a rescheduled train, delayed buses, and no access to a toilet while still dealing with fluid evacuation.

- At the hospital, it was a student training day. The person agreed to be filmed for teaching purposes and gave blood samples for a genetic study. Instead of conventional sedation, they received IV Fentanyl to stay awake and answer questions during the procedure.

- During the colonoscopy, they explained the sensations and described the construction of their Indiana pouch to the students, feeling quite "high" from the Fentanyl.

- After the procedure, they were very hungry after 24 hours without food. They and their mother managed to beat traffic by following an ambulance, concluding it was one of their "top-10 weirdest days" as an ostomate.

Here are some helpful insights and advice from the experience:

1. Consider using an irrigating sleeve instead of a regular pouch during bowel prep or right after a colonoscopy. It can hold more liquid and help prevent nighttime leakage.

2. If the colonoscope can't pass the splenic flexure, a barium enema might be used instead. It's normal for stool to turn white afterward.

3. For long journeys to medical appointments while on prep, carry a large-capacity collection option like a sleeve or oversized drainable pouch to ease anxiety about rapid fluid output.

4. Emotional support is important. Sharing personal stories and using humor can help cope with the unpredictability of ostomy-related procedures.

Additionally, there is an online "Ostomy Info Diary" on The Life Goes On Foundation website, which is a free, user-generated encyclopedia covering various aspects of ostomy life. Contributions are welcome.

Finally, the colonoscopy results were clear, with no cancer detected.
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