This topic is about someone who is navigating life with a loop ileostomy, facing mobility challenges, and dealing with a shortage of supplies. They are seeking support in Miami, Florida, while also managing weight and health issues. Here are some helpful insights and advice shared by others:
- The ileostomy was created in May 2021, with a reversal initially planned for November 2021. However, the reversal was postponed because walking unaided is necessary for using the bathroom.
- The individual weighs over 400 pounds, making movement difficult and painful, especially on the right side. They feel isolated and unsupported by their boyfriend and are looking for friends or a support network in Miami.
- They lost Medicaid coverage, which is currently under appeal, and have run out of ostomy supplies. They are coping as best as they can, but the situation is challenging.
- They have had multiple leg issues, including nine surgeries on the right thigh and fractures in the left leg, leaving both legs weak.
- They are aware that weight is part of the problem and have received a donated box of supplies from another community member, for which they are grateful.
- Medicaid has been reinstated, and they have one box of pouches left. They have ordered free samples from Coloplast to help with the supply gap.
- Their birthday is on May 26, and they are working intermittently on prom-related tasks.
Advice and insights shared by others include:
1. Weight Management:
- Significant weight loss is crucial for a safe reversal and overall health improvement.
- Consider consulting a bariatric surgeon about gastric bypass and pair this with ongoing counseling for long-term success.
- Dietary tips include reducing or eliminating "white" foods like sugar, bread, rice, and potatoes, counting calories, and cutting out flour products.
2. Physical Activity:
- Start with gentle activities like stretching, chair exercises, and short walks, such as to the mailbox. Many free instructional videos are available on YouTube.
- Gradually increase activity to rebuild leg strength and stamina.
3. Ostomy Supplies and Financial Aid:
- Contact local hospitals, Ostomy211.org, and United Ostomy Associations of America (uoaa.org) for donated supplies and peer support.
- All ostomy supply manufacturers offer free samples, with Coloplast samples arriving in as little as three days.
- With Medicaid restored, resume ordering regular pouches and accessories.
- If insurance lapses again, explore Affordable Care Act marketplace plans and consider starting a Social Security Disability application, which can provide medical coverage.
4. Mental, Emotional, and Social Support:
- Seek a mental health professional to address depression and build coping skills.
- Consider joining church or faith-based groups for community and spiritual support, as several members find faith vital to their recovery.
- Evaluate the current relationship; an unsupportive partner may require an honest discussion about mutual needs and expectations.
- Remember that the online ostomy community is always available for encouragement and practical tips.
5. General Encouragement:
- Many ostomates have faced life-threatening challenges and survived. Members encourage choosing to "get better," taking one day at a time, and accepting help when offered.
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