Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,403 members
Apr 16, 2024

Looking for Friends in Miami, FL to Talk About Health Challenges

This topic is about someone who is navigating life with a loop ileostomy, facing mobility challenges, and dealing with a shortage of supplies. They are seeking support in Miami, Florida, while also managing weight and health issues. Here are some helpful insights and advice shared by others:

- The ileostomy was created in May 2021, with a reversal initially planned for November 2021. However, the reversal was postponed because walking unaided is necessary for using the bathroom.

- The individual weighs over 400 pounds, making movement difficult and painful, especially on the right side. They feel isolated and unsupported by their boyfriend and are looking for friends or a support network in Miami.

- They lost Medicaid coverage, which is currently under appeal, and have run out of ostomy supplies. They are coping as best as they can, but the situation is challenging.

- They have had multiple leg issues, including nine surgeries on the right thigh and fractures in the left leg, leaving both legs weak.

- They are aware that weight is part of the problem and have received a donated box of supplies from another community member, for which they are grateful.

- Medicaid has been reinstated, and they have one box of pouches left. They have ordered free samples from Coloplast to help with the supply gap.

- Their birthday is on May 26, and they are working intermittently on prom-related tasks.

Advice and insights shared by others include:

1. Weight Management:
- Significant weight loss is crucial for a safe reversal and overall health improvement.
- Consider consulting a bariatric surgeon about gastric bypass and pair this with ongoing counseling for long-term success.
- Dietary tips include reducing or eliminating "white" foods like sugar, bread, rice, and potatoes, counting calories, and cutting out flour products.

2. Physical Activity:
- Start with gentle activities like stretching, chair exercises, and short walks, such as to the mailbox. Many free instructional videos are available on YouTube.
- Gradually increase activity to rebuild leg strength and stamina.

3. Ostomy Supplies and Financial Aid:
- Contact local hospitals, Ostomy211.org, and United Ostomy Associations of America (uoaa.org) for donated supplies and peer support.
- All ostomy supply manufacturers offer free samples, with Coloplast samples arriving in as little as three days.
- With Medicaid restored, resume ordering regular pouches and accessories.
- If insurance lapses again, explore Affordable Care Act marketplace plans and consider starting a Social Security Disability application, which can provide medical coverage.

4. Mental, Emotional, and Social Support:
- Seek a mental health professional to address depression and build coping skills.
- Consider joining church or faith-based groups for community and spiritual support, as several members find faith vital to their recovery.
- Evaluate the current relationship; an unsupportive partner may require an honest discussion about mutual needs and expectations.
- Remember that the online ostomy community is always available for encouragement and practical tips.

5. General Encouragement:
- Many ostomates have faced life-threatening challenges and survived. Members encourage choosing to "get better," taking one day at a time, and accepting help when offered.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,403 members.

“I mostly read and still feel like I belong.”

“Doctors took notes; they want others to find this website.”

“From midnight blowouts to big wins, there’s always a hand to hold.”

Join Free

Popular Topics

Healthy Shakes!
Pain Relief Tips After Barbie Butt Surgery
Showering and Sauna Tips for Colostomy Users
Managing High Output in Ostomy: Tips and Advice
Positive outcomes
Cushion for Barbie butt
Talking to My Ostomy: Am I the Only One?
How many remove their appliance to shower?
Flying with an Ostomy: Tips and Recommendations
EVERYTHING OLD IS NEW AGAIN

New Topics

What Is Normal After Surgery and Coping with a Colostomy?
Flying with a Stoma: Tips and Concerns
I MEET A SINGER
new to meetan ostomate forum
Bicycle or Moped for Post-Surgery Transport and Exercise Advice
Hello
Experiencing Pain After Stoma Reversal: Is This Normal?
Back to Exercise and Update
B. Withers - Be Kind 42
Flying Tips for Long Flights with a Colostomy
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑