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41,404 members
Apr 24, 2024

Seeking Uplifting Success Stories and Positive Vibes

This topic is about finding uplifting success stories and positive vibes from people who have ileostomies or colostomies. The person who started the conversation is feeling anxious after reading some negative experiences online and is looking for encouragement as they navigate their own recovery. They are making progress and want to hear from others who have found happiness and fulfillment with an ostomy.

Here are some encouraging insights and advice shared by others:

1. Many people say, "My stoma saved my life." They share stories of living many more years thanks to their ostomy, enjoying activities like working, traveling, raising families, and playing sports. Some have even gone on adventures like expeditions to Antarctica.

2. Adopting a positive mindset can make a big difference:
- Embrace life and believe in yourself. See your stoma as a lifesaving friend.
- Use motivational tools like music playlists, setting goals, and daily affirmations.
- Remember, "A stoma never killed anyone, but a stoma has saved many lives."

3. Education and experimentation are key:
- Reach out to different ostomy product vendors for free samples to find the best fit and avoid issues like leaks or odors.
- Some find that irrigation combined with magnesium citrate helps manage bowel control and reduce pain.

4. Diet and activity tips:
- Keep track of what and when you eat, especially before dining out, traveling, or exercising, to manage your pouch better.
- Stay hydrated and be cautious with foods that might cause blockages, learning from any mistakes along the way.

5. Mental health strategies:
- It's normal to experience mood swings. Identify what triggers them and find healthy ways to express your feelings, like journaling or talking in forums.
- Lean on family, faith, and the ostomy community for support. Being your own best friend can help combat loneliness.
- A pharmacist suggests taking vitamin B6 (100 mg/day) to support mood, as it's water-soluble and safe.

6. Perspective and gratitude:
- Surviving serious health issues like cancer or sepsis has left many feeling grateful for more time with loved ones and the simple joys of life.

7. Long-term proof:
- Members who have lived with an ileostomy for over 50 years share that a "normal, active, happy" life is possible. Many say they would have chosen surgery sooner if they had known how positive the outcome would be.
See full discusison
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