Biofeedback with an Ileostomy: Experiences and Advice

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143
Micky25
Sep 19, 2025 8:03 pm

Hi, can biofeedback be done while having an ileostomy? My surgeon wants me to try biofeedback before he does the reversal to make sure that I won't have muscle issues when he does the reversal. I would like to know if anybody has had a reversal and had fecal incontinence and leakage come back.

Dwild-WA
Sep 20, 2025 3:59 am

I'm considering reversal, and my surgeon tested the internal muscles of my rectum to see if I can control it.

DeMaGo
Sep 20, 2025 5:20 pm

Hi Mickey,

I just had my reversal yesterday and didn't know about this or have it, but I can say I've gone once since without any trouble. I did get up to go, thinking I had to before that first one, though. I have been doing clenching of the muscles to help.

I've had my ileo for just over a year.

If I had the opportunity, I would do it.

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Martles
Sep 23, 2025 11:53 pm

I had a bad experience with my reversal. I couldn't leave my house for very long without the fear of needing a bathroom. If I had a flight, I would not eat any food the day before the trip. I could only go on very short car rides.

I was eating very little but had to go to the bathroom a lot. The reversal ruined my social life. At some point, I begged my gastro surgeon to replace my ileostomy so I could have a more normal life. I am much happier now, even though I can no longer wear bikinis.

Hope you have much better luck than I did. I don't think my problem was muscular.

Amac
Sep 24, 2025 7:37 am

Hi micky25

Had my reversal done on July 25th last, after having a colostomy for 18 months and an ileostomy for 9 months. The surgeon never mentioned what you are asking about, so I can't reply, but he did say "urgency and frequency" will be part of the process. I definitely have frequency and a little leakage (not much), but I do have a burning/itching in my rear area after bathroom breaks, so I check myself regularly. Quite sore, I'm waiting for an appointment to address these issues. I use "Sudocrem" now after movement to ease the burning. On the other hand, I do operate as normally as I can, but it's about management. I am fearful of wind as I'm unsure if it's just wind????

If I had to make the decision again, I'm really not sure which decision I would make. At 58, I thought I was young enough to try. I do try to eat a high-fiber diet to help, and nothing bad can be avoided. I hope this information helps,

 

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