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Apr 28, 2024

Reversal Anxiety

The topic at hand is about someone who is preparing for an ileostomy reversal after having lived with an ostomy for nearly two years. Initially, they had a colostomy, which was then changed to an ileostomy. They are excited about the possibility of living without an ostomy bag, especially with summer approaching, but they are also anxious. Their first attempt at a colostomy reversal did not go well, and they are worried about making the same mistakes, which could lead to more pain, complications, or a longer hospital stay. They are looking for advice and experiences from others who have gone through similar procedures.

Here are some helpful insights and advice:

1. **Seek Support and Information**
- Reach out to organizations like the Ostomy Canada Society for education and reassurance.

2. **Discuss Thoroughly with Your Surgeon**
- Have an open conversation with your surgeon about why the first reversal failed and if those risks still exist.
- Ask about expected bowel function, the surgeon’s experience with similar cases, options if the reversal fails, and their personal recommendation.
- If answers are unclear, consider getting a second opinion from another specialist.

3. **Balance Medical Readiness with Personal Eagerness**
- Make sure your colon is healthy and intact before proceeding. Consider whether the decision is being driven by medical advice or personal desire.

4. **Understand Recovery Can Vary**
- While most reversals are successful, recovery times can differ. Some people experience erratic bowel habits for weeks or months, while others recover quickly.

5. **Learn from Others’ Experiences**
- Some have had positive outcomes, finding the surgery painful but ultimately worthwhile. Others have faced challenges, such as severe pain and ongoing issues even after stoma revision.

6. **Prepare for Appointments and Decisions**
- Write down questions and bring someone with you to consultations to help remember the information.
- Consider the temporary recovery challenges against the long-term benefits of living without an ostomy bag.
- Stay optimistic but realistic, understanding that a small percentage of people may continue to have problems.
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