This topic is about someone who is eight weeks post-colostomy surgery and uses a wheelchair due to spina bifida. They are doing well in their recovery but are seeking advice on managing their colostomy appliance while seated and wondering if their output will become more predictable. Here are some helpful tips and insights shared by others:
1. Scheduling and Adaptation
- It often takes about 3 to 4 months for output to settle into a more predictable pattern. The frequency can depend on where the stoma is located along the colon.
- Many people with colostomies find they need to empty their pouch only once a day, or sometimes every 2 to 3 days, unlike those with ileostomies who may need to empty 5 to 12 times a day.
2. Product and Accessory Suggestions
- Consider using a Hollister 2-piece system with a Coloplast moldable ring and 3M Cavilon barrier spray. This setup allows you to change pouches without disturbing the wafer and makes it easier to release gas.
- A thin elastic Hollister pouch-retention belt can add security, especially when transferring from a wheelchair to a bed or car.
- Change wafers approximately every 7 days, though some people manage up to 10 days without issues.
- Take advantage of free samples from major manufacturers like Hollister, Coloplast, and Convatec to find what works best for your stoma shape, wheelchair posture, and dexterity.
3. Practical Management Tips
- Always carry a complete emergency change kit, including an extra pouch, wafer, disposal bag, and paper towels. Keep these supplies in your work bag, car, or wheelchair pouch.
- Prepare a mental plan for handling a "worst-case" leak scenario and have a short exit line ready, such as "I need to step out for a medical issue," to ease anxiety in public.
- Eating one large marshmallow about 30 minutes before changing your appliance can slow output, giving you more time to complete the change.
4. Education and Support Resources
- Websites like the United Ostomy Association of America (UOAA.org) and Ostomy101.com offer detailed guidance on food choices, blockages, skin care, travel, and clothing.
- Local ostomy support groups and online forums can provide valuable peer experiences, especially for wheelchair-specific tips.
5. Wheelchair-Specific Considerations
- Transfers involve lifting body weight, so it's important to remind healthcare providers that "no lifting" rules need to be adapted for wheelchair users.
- Transparent or windowed pouches can help you monitor fill levels without relying on sensation while seated.
- Arrange your supplies so they are within easy reach without having to lean forward too much, reducing strain on the stoma and abdominal wall.
These insights come from individuals with colostomies, ileostomies, and long-term wheelchair use, highlighting that personal experiences can vary and experimentation is important.
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