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May 19, 2024

Finding a Job with an Ileostomy - Seeking Advice

This topic is about navigating the job market and workplace while managing an ileostomy. An ileostomy can present unique challenges, such as the need for frequent bathroom breaks and staying hydrated, which can sometimes make job hunting and working a bit more complicated. Here are some practical tips and insights shared by others who have been in similar situations:

1. Legal Protections:
- In the U.S., the Americans with Disabilities Act (ADA) and the Rehabilitation Act of 1973 offer protections. Local human-rights or equal-employment agencies can also help investigate discrimination claims.
- While some suggest pursuing legal action if discrimination occurs, others recommend focusing on finding a more understanding employer, as proving discrimination can be difficult.

2. Disclosing Your Ileostomy:
- It's generally advised not to disclose your ileostomy during the hiring process or at work unless a specific safety accommodation is necessary.
- Consider wearing a support or stealth belt and loose clothing to interviews, keeping supplies discreet, and maintaining a positive attitude without feeling the need to explain your condition.

3. Suitable Job Types:
- Many people with ileostomies have successfully worked in various roles, including construction, office or medical secretary positions, third-shift caretaking, and customer service or home-office jobs.
- Some have worked for decades without anyone knowing about their ileostomy.

4. Managing Bathroom Breaks and Output:
- Plan your meals to manage output, such as having a small breakfast and light lunch to keep output lower until you get home.
- Use normal breaks to empty your pouch and utilize staff or public restrooms.
- For desk jobs, consider placing a disposable bed pad on your lap if you're concerned about leakage.
- Keep a compact "bathroom bag" with necessary supplies, and be mindful of privacy if lockers are shared.

5. Hydration Strategies:
- Carry a water bottle if allowed by workplace policy. If not, discuss a medical accommodation after being hired.
- Electrolyte drinks can help reduce the total volume of fluids needed.

6. Confidence and Mindset:
- Many individuals with ileostomies have worked successfully for many years without any issues. An ileostomy doesn't have to limit your career choices.
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