This topic is about someone who has had an ileostomy for 14 years and is now experiencing a new and troubling issue: sudden, severe pain behind the stoma. This pain is causing a lot of worry, especially since the output from the ileostomy hasn't changed in volume or consistency. A recent CT scan showed something unusual, but the person is waiting for more information from their healthcare team. Here are some pieces of advice and insights shared by others:

1. If the pain gets worse or if the output stops, it's important to go to the Emergency Room immediately.

2. Some people have experienced similar issues, where a loop of the small intestine pushes under the stoma, creating a peristomal hernia. This can change the position of the stoma, although it might not always cause pain.

3. It's crucial to actively reach out to the GI team for clear explanations of any medical findings. Don't wait passively for them to contact you.

4. If the explanations from your healthcare providers are unclear or unsatisfactory, consider seeking a second opinion from another surgeon, gastroenterologist, or an ostomy nurse.

5. It's important to feel comfortable discussing any ostomy-related problems. Getting accurate information is key to receiving timely and effective treatment.