This topic is about managing the challenges of having an ileostomy, particularly when dealing with high-output variability. This means that the output from the ileostomy can change rapidly in consistency, from normal to pasty to watery, sometimes within minutes. Here are some helpful tips and insights shared by others who have experienced similar issues:
1. Diet and Foods to Thicken Output:
- Consider the BART diet, which includes bananas, applesauce, rice, and toast. Bananas are often highlighted as particularly effective.
- Other foods that might help thicken output include bread, potatoes, oatmeal, marshmallows, Cheerios, potato chips, and noodles. However, be cautious with foods like celery and noodles, as they can cause bloating for some.
- It's important to experiment with different foods to see what works best for you, as everyone's body reacts differently.
2. Soluble Fiber:
- Incorporating soluble fiber, such as Metamucil or generic psyllium husk powder, can help thicken the output for many people.
- Some prefer to get their fiber from whole foods, but supplements can be effective if tolerated.
- Be careful with insoluble fiber, like seeds and tough skins, as they can lead to blockages.
3. Medications to Slow Motility:
- Medications like Loperamide (Imodium) and Lomotil are often used to reduce the liquidity and frequency of output.
- One person found success with a combination of Loperamide and dietary fiber, achieving a more manageable output.
- It's important to monitor the use of these medications closely, as they can sometimes cause blockages. Discuss dosing with your doctor and try to reduce usage over time as your bowel adapts.
4. Fluid Management:
- The amount and timing of fluid intake can affect output. Drinking large amounts quickly can lead to increased output.
- Using oral rehydration solutions, which balance water, sodium, and glucose, can help with absorption and reduce output volume.
5. Track and Analyze:
- Keeping a detailed diary of food and drink intake, along with corresponding output, can help identify personal triggers and effective combinations.
- The length of the small bowel can affect output, with shorter lengths often leading to higher, thinner output. Check your surgical report for details.
6. General Adaptation and Equipment Tips:
- The small bowel continues to adapt after surgery, and outputs often become more predictable over time.
- Many people find they develop a more regular bathroom schedule as time goes on.
- Using clear pouches can help you quickly monitor changes in consistency.
- Staying hydrated is crucial to protect your kidneys, as high output can increase the risk of dehydration.
Managing a variable-output ileostomy is a personal journey, and finding what works best involves a lot of trial and error with diet, fiber, fluid choices, and medications, all under the guidance of a healthcare professional.
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