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Jul 11, 2024

Struggling After a Failed Ostomy Reversal

This topic is about someone who faced a challenging journey after being diagnosed with colon cancer. They had a temporary ostomy after surgery, which was later reversed. Unfortunately, the reversal failed, leading to serious complications and the need for another, likely permanent, ostomy. This experience was traumatic, leaving them with emotional distress and fear of attempting another reversal. Here are some pieces of advice and insights shared by others who have been through similar experiences:

1. Emotional recovery
- It's normal to feel anxiety, depression, PTSD, and grief after such a life-changing event. Give yourself time to heal emotionally and consider seeking support from forums, counseling, or peer groups.
- Celebrate small day-to-day achievements. Progress often comes "one step at a time."

2. Life with a permanent ostomy
- Some people choose to keep their stoma permanently because it provides a reliable, pain-free life. Quality of life can be very good with a permanent ostomy.
- Acceptance usually improves over time. Try not to judge your future based on how you feel immediately after surgery.

3. Reversal considerations
- If you are managing well with the stoma and your life is better than before surgery, weigh this against the uncertainties of another reversal.
- One colorectal specialist suggests waiting at least 6 months post-op before considering a reversal, as adequate healing time can lower risks.
- Failure rates for reversals vary, so it's important to get detailed statistics and discuss your personalized risk with a colorectal surgeon.

4. Medical team & second opinions
- If your original surgeon is not a colorectal specialist, consider transferring your care. A specialist can provide clarity on whether another reversal is advisable.
- You have the right to seek a second opinion. Gather information, ask questions, and be an active participant in all consent discussions.

5. Practical coping tips
- Build a "Team Self" by researching, asking questions, and staying positive to help your clinicians do their best work.
- Deep-breathing or relaxation techniques can help manage anxiety while you are making decisions.
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