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Jul 18, 2024

Facing Multiple Surgeries and Emotional Struggles with Ileostomy

Topic Explanation
The discussion revolves around a 66-year-old individual who has been dealing with multiple health issues including Crohn's disease, diverticulosis, and a stricture. They underwent surgery in October 2023 to remove the stricture, but due to severe inflammation, the procedure was not completed as planned. Instead, a colostomy was performed to reduce the inflammation. Further complications led to another surgery in March where the stricture was successfully removed and an ileostomy was placed. The individual is now facing emotional struggles and fears about an upcoming surgery scheduled for August 5, to potentially reverse the ileostomy. They express concerns about post-operative complications, particularly the fear of bowel leakage, and share their emotional journey, including a significant emotional breakdown. They also discuss the practical aspects of managing the ileostomy, such as dealing with the consistency of the output and the positioning of the stoma.

Advice and Insights from Replies
1. Mindset and Emotional Management:
- Focus on not worrying about potential issues that haven't occurred yet, as mindset can significantly impact outcomes.
- Allow yourself to grieve and express emotions as it is beneficial for emotional health. It's important to accept and process feelings rather than suppressing them.
- Recognize that feeling overwhelmed or disgusted is normal, and it's okay to rely on support from loved ones during tough times.

2. Practical Management of Ileostomy:
- Adjusting to the ileostomy involves getting used to handling and managing the stoma and its output. Over time, handling the output becomes less distressing.
- Dietary choices can affect the consistency of the stoma output. For instance, a carnivore diet might lead to more liquid output, which some find easier to manage.
- Using medications like Imodium can help manage the consistency of the output, making it thicker and less prone to causing leaks.

3. Support and Preparation for Surgery:
- Trust in the medical team's expertise and experience, especially when they are highly specialized, as they aim to ensure the best outcomes for their patients.
- Prepare for surgery by ensuring all necessary pre-operative procedures are completed, even if they seem redundant or unnecessary.
- Stay informed and proactive about your health management, including understanding and adhering to pre-surgery requirements like EKGs and medical clearances.

4. Community and Emotional Support:
- Engage with and
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