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Jul 18, 2024

Facing Multiple Surgeries and Emotional Struggles with Ileostomy

This topic is about a person preparing for an ileostomy reversal while dealing with anxiety and past complications. They have been through a lot, including surgeries and emotional challenges, and are seeking advice and support from others who might have similar experiences. Here are some helpful insights and advice shared by the community:

1. Mind-set matters
- Try to focus on what is actually happening rather than worrying about problems that might never occur. Keeping a positive outlook can improve outcomes.

2. Allow emotional release and self-compassion
- It's normal and healthy to grieve, cry, and acknowledge trauma. Accept feelings of weakness, and with support, your inner strength will emerge.

3. Perspective on bowel output and appliance management
- Remember, it's just digested food. Over time, handling output becomes routine and less unpleasant.
- Some find liquid output easier to manage; adding a little water can help when the stool is thicker.
- Diet affects consistency; for some, a Carnivore Diet results in more liquid output.

4. Imodium and leak control
- Some people with an ileostomy don't use loperamide (Imodium) and manage fine, while others take up to 8 tablets daily to firm up output and prevent leaks, especially at night.
- Pairing Imodium with a more substantial sealing ring can further reduce leaks.

5. Reversal experiences
- Many report that takedown surgery is easier than emergency stoma surgery, and bowel habits often return to normal.
- Even if reversal isn't successful, life with a permanent ileostomy can still be full and active, with further surgery as an option.

6. Surgeon trust and preparation
- Surgeons act based on experience and in the patient's best interest. A 98% success estimate is encouraging.
- Last-minute pre-op testing requirements can be frustrating but are meant for safety.

7. General reassurance
- Community members express solidarity and confidence in the ability to adapt, regardless of the surgical outcome.
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