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Jul 25, 2024

Ileostomy Refashioning Experiences and Advice Needed

Ileostomy refashioning is a procedure that some people with an ileostomy might need if their stoma has retracted or isn't functioning well. If you're considering this surgery, you might be curious about what it involves and what others have experienced. Here are some insights and advice that might help:

1. Revision vs. Relocation
- A "revision" involves working on the existing stoma site. The surgeon will reopen the area, pull more of the bowel through, and re-suture it to ensure there's enough length.
- A "relocation" means moving the stoma to a new spot on your abdomen.

2. Possible Need for Open Surgery
- Sometimes, the bowel can't be pulled through easily due to adhesions, which might require the surgeon to switch from a laparoscopic approach to an open operation.
- It's a good idea to discuss the worst-case scenario with your surgeon so you can be prepared both mentally and logistically.

3. Adhesions and Scar Tissue
- Adhesions are a common reason why a simple pull-through might not be possible. Removing them can be a quick process or more involved, depending on how extensive they are.
- Significant scar tissue might necessitate an open procedure, which could extend your recovery time.

4. Outcomes and Stoma Function
- Many people report improved output and easier management after refashioning. One person likened the improvement to "going from a soda straw to a garden hose."
- When refashioning is done at the same location, the stoma's diameter is usually larger because existing scar tissue needs to be removed, which can help appliances adhere better.

5. Recovery Considerations
- Open surgery generally requires a longer healing period than laparoscopic surgery, but many find the improved stoma function to be worth the extra recovery time.
See full discusison
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