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41,405 members
Aug 17, 2024

life

This topic is about living life with an ostomy and how to maintain a positive outlook while moving forward. The originator of the discussion shares their personal journey after undergoing significant bowel surgery, highlighting their experiences and the support they've received. Here are some key points and advice shared by the community:

- The originator feels youthful and vibrant, like they're still 18, despite the years that have passed since their surgery.

- They survived a burst intestine three years ago, had a section of their small bowel removed, and have now reached a point where they are pain-free and able to enjoy everyday life.

- They express gratitude for the online ostomy community, which has provided invaluable support, tips, and shared experiences that have greatly aided their recovery and outlook.

Advice and insights from the community include:

1. Mental outlook is crucial: Many members emphasize that coping with an ostomy is largely mental, with 90-95% of it being about maintaining a positive attitude. Focusing on the positive aspects can help life feel more normal.

2. Accept the new normal: Several people mention that after about 18–19 months, wearing a colostomy or ileostomy pouch becomes routine and often fades into the background of daily life.

3. Use online support: Participants highlight the importance of ostomy websites and global forums for practical tips, encouragement, and a sense of connection, which can speed up the adjustment process.

4. Protect the small bowel:
- Chew food thoroughly to minimize the risk of blockages or perforations.
- Be vigilant for signs of obstruction, especially if part of the small intestine has been removed or if short-bowel syndrome is a concern.
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